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Hannah Banana
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"My name is Hannah and I have EB"
Female
20 years old
GREENVILLE, South Carolina
United States
Last Login:
12/5/2006
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Hannah Banana's Interests
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| General | I like to play with my 3 younger sisters who are EB free.I also love school.
| | Music | ~One day~
The Dream of an EB parent ...
(This poem was published in the D.E.B.R.A. U.K. Autumn 1996 Newsletter)
One day without crying, one day with no pain
One day of not suffering those blisters again.
One day with no dressings, or needles or creams
One day you'll awaken with laughter not screams.
One day of not fearing the slightest tumble
And to watch you join in with your friends rough-and-tumble.
One day of not feeling great surges of guilt
For the genes that I gave you, imperfectly built.
One day of not having to turn a blind eye
To the ignorant stares of some passersby.
One day, in the future, a potion they'll issue
To toughen your skin that's as strong as wet tissue.
One day a complexion of peaches and cream
Will become a reality, not just a dream.
One day without crying, one day with no pain,
One day of not suffering those blisters again.
. . . one day
| | Movies | All my cartoon movies | | Television | I like I love lucy,leave it to bever,full house,sponge-bob,and any cartoon
Myspace Layouts
| | Books | I cant really read yet but I almost can! | | Heroes | God and My family especially my gam-ma for always taking care of me when I dont feel good |
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Hannah Banana's Details
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| Status: | Single | | Zodiac Sign: | Aries |
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Hannah Banana's Latest Blog Entry
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what my EB shirt says....
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The EB website
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Hannah Banana's Blurbs |
About me:
Hi Im Brittany and I am making this myspace for my cousin Hannah.I was to spread the word of her terrible skin disease called E.B.If you have any questions at all please feel free to ask me.
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~What is EB?~
Epidermolysis Bullosa Patients have skin as fragile as a butterfly’s wing which can blister at the slightest touch — even from a mother’s cuddle. Normal day-to-day life can cause constant pain and scarring, which, in the worse forms, leads to eventual disfigurement, disability and often early death.
EB is an inherited disease that affects less than 10,000 children and adults in the United States. According to the latest figures, most of these patients suffer from the simplex form of EB, about 600 have the Junctional form, 600 have RDEB, 840 with DDEB and 320 with some unclassified form of EB.
People born with EB lack anchors that hold the layers of their skin together. As a consequence, any activity that rubs or causes pressure produces a painful sore akin to a second-degree burn. One forms of EB is lethal in the first weeks or months of life. Some are mutilating over time. Infection is a serious, ongoing concern. As if the diagnosis is not heartbreaking enough, no treatment for EB has been effective. Parents have coped by protecting the child's skin with gauze and ointments, to prevent and protect the wounds and healthy skin-something that HMO's refuse to pay for.
The saddest part is that EB is so rare that most doctors and nurses can work a lifetime and never bump into this condition.
EB is currently an incurable condition with no effective treatment
Myspace For Girls Only - MyGirlySpace.com
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Who I'd like to meet:
I would like to meet other kids or adults with EB.
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| Hannah Banana's Friend Space (Top 12) |
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Hannah Banana has 19 friends.
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