Hidradenitis Suppurativa Awareness

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Hidradenitis Suppurativa - Often referred to as the Hidden Disease

  • Hidradenitis Suppurativa Awareness

  • 42 / Female
  • US

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Hidradenitis Suppurativa Awareness's Latest Blog Entries

Hidradenitis Suppurativa Awareness's Comments

Displaying 10 of 201 comments
  • Nov 17 2009 1:45 PM

    My husband is now in the hospital for another surgery. He just had one a month ago and it opened up with infection. Please keep him in your prayers. I know he will be ok . I thank everyone that post their comments on this wonderful myspace page. Now I know he is not going through this alone and it shows you all are fighters and will not let HS win.
    Thank you and good luck to all of you.
  • Nov 13 2009 5:45 AM

    Hey! Just stopping by to see how everyone is doing! Found a Doctor who Knows alot more than every other doctor ive been to and May be facing surgery sometime soon, They said that My best bet is to have the surgeries done, Im scared, nervous not so much as going into the surgery but afraid of the outcome afterwords such as Pain, Infection, Reaccurence in a diff spot on my body all the normal things to be nervous about. If anyone has some Soothing advice or a good old fashiond pep talk Id love to hear it right about now Thanks! xoxox Jess
  • Oct 26 2009 3:30 AM

    my husband is having surgery Monday @ 1pm we have finally found a surgeon who actually has two other HS patients! He is going to be pretty invasive tomorrow with the surgery, he said he will clean out every tunnel & all sores. Keep us in your thoughts & prayers please.....Deaneen & Randy
  • Oct 26 2009 3:28 AM

    I have read alot of articles that say that your diet & smoking have alot to do with HS
  • Oct 25 2009 4:39 AM

    this may sound strange, but over the years i have found out certain foods really aggravate hs; such as oils/fats which are solid at room temps, hydrolyzed/hydrogenated soybean oil, nuts, highly processed white breads, caffeine, coffee, cheese, real 1/2 and 1/2 creamer, ice cream, pizza, one of the worst is frostings. when i eat these foods or any foods in this type of grouping, i have to flush my body for days and days with water to chase out the fats so they will not adhere or deposit themselves and then come out through my very sore hs ducts...and those fats do seem to do just that. i have had hs since i was in my early 20's and many doctors with no diagnosis. finally properly diagnosed last year at 36 while i was a few months pregnant.
  • Oct 23 2009 5:40 AM

    My Husband has just been admitted to St Joseph's hospital in Lexington, KY for his HS nothing seems to be helping his wounds/sores/boils he has been on heavy doses of meds including I.V. for over three months & is the same if not worse. His Dr has recommended that he have surgery, praying that he can have some relief & a better quality of life, instead of constant drainage, pain & suffering. Thanks for listening, God Bless
  • Oct 22 2009 4:47 PM

    I found out I have HS this march I have my first surgery this monday. I was given 2 choices either take out strips from under my arms one by one as they heal or one big patch and I would have to have a wound vac. Just curious to know if one heals better then the other? Also I just started taking Zinic, probotics also was told to try tumeric but read that it could be a blood thinner didn't know if I should take that while starting surgeries? Thanks
  • Oct 14 2009 9:38 PM

    My husband had his 6th surgery today and it went well but we found out the Hidradenitis has spread to another part of his body.
    I just wish sometimes I could share his pain.
  • Sep 24 2009 2:01 AM

    i just had a surgery today last year had ex cession on my right armpit. . . . today was my thighs. . . .but i came away from this surgery very upset and unsatisfied. i am hoping to get some emails from people on here regarding the situation. on both thighs combined just the inside thighs i have well over a hundred spots. Today i went in expecting all the affected tissue and spots to be removed as this seems to be the only way noted to successfully help control the outbreaks. . . yet i wake up and find the surgeon has removed only 7 of the spots . . . yes just seven. . . . this seems pointless and has really upset me. . . . i am looking for some thoughts and input. . . please help and email with feedback as i am almost in tears.
  • Sep 14 2009 2:02 PM

    hi thanks for the add. I am going for my second surgery today on my armpit, wish me luck!!!

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