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WE WOULD LIKE TO THANK THE FOLLOWING PEOPLE FOR ALL THEIR SUPPORT :- BABS & PHILL (NAN N GRANDAD), LINDA & JIM (NAN N PAP) DR ALI (NORTHAMPTON GENERAL HOSPITAL) DR ENGLISH (BIRMINGHAM CHILDRENS HOSPITAL) ALL THE NURSES ON DISNEY WARD NORTHAMPTON GENERAL HOSPITAL ESPECIALLY KIRSTY, MICHELLE, PETE, RAE RAE, VICTORIA AND ALL THE PINKY'S, ALL OUR BROTHERS N SISTERS, OUR FRIENDS WE MADE ALONG THE WAY MY BEST BUDDY CHERYL, JOHN, LEIGH-AN, LISA & ROY WITH KELLY AND ALL THE OTHERS WHO ARE GOING THROUGH A TOUGH TIME AT THE MOMENT. WE WOULD LIKE TO ALSO THANK GREENS NORTON PRIMARY SCHOOL FOR BEING SO UNDERSTANDING. CLIC SARGENT FOR ALL THEIR HELP AND THE JOSHUA FOUNDATION. WITHOUT YOU WE WOULD NEVER HAVE COME AS FAR AS WE HAVE. x
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Well its nearly a year on and its been a hard year at that but we have kept busy. Our house we lived in no longer felt like our home without her so together we decided to move and start a fresh, taking the memories with us. The boys have settled into a new school with new friends. We also had a little surprise along the way which shocked us all, our angel sent us another angel to be with us. I found out the i was pregnant again and Naomi was going to be a big sister. I gave birth to a little girl on 3/4/08 we named her Tegan Nea Ainsworth. Her middle name is so she can feel that she was a part of her sisters life even though she never got to meet her as it is made up of Naomis initals. Naomi Elizabeth Ann Ainsworth.
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Hello my name is nikki and i would like to tell you bit about the wonderful little girl you see before you.
Her name is Naomi Ainsworth she is 2yrs 5mths and the most happy little girl you would have ever met. She was born on 14th December 2004, such a happy contented baby never wanted for anything. She loved her brothers Jake James and Bailey and Dad Jamie they loved her, still do.
On 30/06/2006 when she was 18 months i took her to the doctors because she had stopped using her right hand. They sent us to the hospital where a CT scan showed us she had a brain tumour the size of an adults fist. This brought our world crashing down in little pieces. The next morning we were sent stright to Birmingham Childrens Hospital. There they gave her an MRI scan so they could see exactly where it was. They opperated on her for 10 n half hours where they were able to remove 40% of it, they couldnt remove it all as the bulk of it was wrapped around the main arterys. It took a week for the results to come through which showed that it was an ATYPICAL TERATOID RHABDOID TUMOUR or ATRT. This was an extreamly rare tumour only really appeared in children under 2, and has a less than 10% chance of survival. It only has a 2-3% chance of getting it in the first place, and only 1% that you would get it on the brain. The doctor were honest right from the start they told us that it was so rare that they didnt know what if any treatment would work and if it did work for how long it would keep her well. She then started chemothearpy which was able to be carried out at our own hospital in Northampton on Disney ward. She was scanned on a number of occasions to see the progress of the tumour and chemo. If the chemo was working then they carried on with that plan if it slowed down working then they changed plan. We never knew form one day to the next what was happening. We had to stay in the hospital for 6 months with only 10 days at home. This was due to her age and treatment plan. During the stay we met lots and lots of fantastic people ranging from nurses and doctor to poorley children and their brilliant famlies.
She stopped eating due to soreness form the chemo and because she was sick nearly every day, and had to have a NG tube put down her nose to feed her with, and sadley she didnt eat again (not real foor anyway just the odd grape or raisen). She was sick all the time needed regular blood and platlet transfusions. She spent most of the time linked to a drip because the chemo made her so ill.
We made endless transfers to and from Birmingham for scans ect. But yet she always had a smile for you!! She was finaly allowed home on christmas eve and stayed at home till 8/1/2007. That was fantastic being all together at that special time.
When we went back to Birmingham Childrens Hospital on the 8th she had another MRI scan to plan the next step which was to have high dose chemo followed by radiotherapy but after an agonising 3 day wait we were told that the scan sadley showed that it had come back much more aggresive. They said she only had a few months left to live. They could give her more treatment but it would only give her a few extra weeks. We decided that as the chemo made her so ill we would enjoy what we had left with her as she used to be.
Two charitys helped us go on holiday with her they were The JOSHUA FOUNDATION and CLIC SARGENT. They took us to Scotland so we could have fun with her. The JOSHUA FOUNDATION provided us with a limo to take us to the airport where CLIC flew us up there. It was fantastic we stayed in a place called Malcome Sargent House being waited on hand and foot for the week with medical help at hand if we needed it.
Then slowley as time went by our little Naomi slowed down didnt want to do anything except sleep then sadley our angel who always had a smile for everyone passed away on 1st May 2007 aged 2 years 5 months. We love her and miss her so much that it hurts getting up evey day without her but now we know she is pain free and has the peace she fought so hard to get. She can rest to knowing that her famalie have a huge list of people who have been there all the way through her illness and life and will continue to be there for them.
WE LOVE YOU NAOMI GOOD NIGHT BABY SLEEP SAFE NOW AND REST x
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SPONSOR ME ONLINE TODAY TO HELP MAKE A DIFFERANCE FOR TOMORROW. I AM RUNNING THE RACE FOR LIFE 11 JUNE 2008 AT SILVERSTONE. PLEASE DIG DEEP AND SPONSOR ME WHAT YOU CAN THANK YOU.
www.raceforlifesponsorme.org/naomisourangel
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Hi there...I haven't said hello in forever. I have a caringbridge site now also for my family. I notice that you occasionally visit my niece, Brook's site. --April
How are you doing? My niece, Brook Johnson, just finished her radiation and is now on oral chemo and home. Did her mom ever email you are anything or respond to you? She's pretty strange so I don't know who she responds to or not that I send her wasy
Hi Nikki We're so glad that you had fun and thanks so much for raising such a fantastic amount of money. It will be a great help to everyone we support. Cheers! CLIC Sargent
In my mind i see a beautiful young woman she has a smile that could stop traffic and a laugh that is contagous she is someone that people like to be around but when she is not there, they only say nice things about her, never bad. she is a wonderful mother and when her children look into her eyes they know her love is unconditional. i will never get the chance to meet this 'angel' i wish i had xxxxxxxxxxxx
Our darling Naomi you came into the world on the 14th December 2004 and changed our lives forever, a beautiful child with a nature to match. Watching your suffering over the past months has been the hardest thing that I have ever had to do but it was you who helped me through that terrible time because despite your pain you always managed to smile and pass on some of your courage to me. You brought our family closer than we had been for a long time and gave joy to everyone whose lives you touched. But now you have gone sweetheart and taken a part of me with you. I long to hear you say 'Hiya Nanny' and see that cheeky grin and I long to hold you in my arms again but that can never be so I shall have to be content with holding you in my heart. Your mum and dad gave me and grand-dad a beautiful gift the day you were born which we shall cherish forever. Sleep peacefully my darling Naomi, I shall always love you - Nanny x
The wonders of nature bring into full bloom It's colors and signs of seasonal bliss It draws the heart toward it's vividful views And unto the things that it should not miss
It's creatures that are drawn out from their dens Bring warmful views to the earth once more That they would grow and produce in a thriving state In abundance of all it's galore
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