Antiphospholipid Antibody Syndrome (APS) ~ APSFA
www.myspace.com/antiphospholipidantibodyThe FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: Mood: accomplished
Posted at 5:34 PM Nov 21 view more
APsfa Inc
- Wisconsin, US
- Last Login: 11/25/2009
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General
We also have a support forum run by Heidi & Tina founders of the APS Foundation of America, Inc., a non profit organization. This forum is an information source and a friendly support group for people who have Antiphospholipid Antibody Syndrome or for anyone who's lives are touched by it. It is sometimes referred to as APS, APLS, or APLA and is known as Hughes Syndrome or "Sticky Blood" in the UK. APS is associated with recurrent clotting events including premature stroke, repeated miscarriages, phlebitis, venous thrombosis and pulmonary thromboembolism. If this disease touches your life in some way, please feel free to join in our discussions! :) We're glad to have you visit! APS Friends & SupportTelevision
See our TV show on the Discovery Health Channel. We are on Mystery Diagnosis: Falling through the Cracks.Books
These are our recommended books: APSFA Recommended Books
Antiphospholipid Antibody Syndrome (APS) Focus Interview
Details
- Status: Single
- Here for: Networking
- Zodiac Sign: Gemini
- Occupation: Non Profit Public Charity Organization - 501c3
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Latest Blog Entries
- Nov 21, 2009 FALL/WINTER 2009 volume of our quarterly newsletter, "Antiphospho...What??" is Available
- Nov 15, 2009 *Exclusive* 2009 APSFA Holiday Ornament
- Nov 15, 2009 2009 APSFA Giving Tree
- Nov 12, 2009 'Wipeout' -- Another Reality-Show Death (Due to APS)
- Oct 23, 2009 2009 H1N1 Flu (referred to as “swine flu” early on) and Seasonal Flu Information for People
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Blurbs
About me:
APS is associated with recurrent clotting events including premature stroke, repeated miscarriages, phlebitis, venous thrombosis and pulmonary thromboembolism. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.
Do You Know Who I Am?
written by: "Richelle"
Few people notice me for I am like a snake in the grass. My ways are cunning and baffling. I will take your heart and wreak havoc. I will take your brain and make it into mush. I enjoy catastrophe and heartache. I will take every child out of your womb. I will not give up. I will not give up until I have every last baby. I will creep in quietly. You won’t notice me at first. People will think you are crazy and they will say mean things about you. You will think you are crazy too and you will fear what each day shall bring.
I will begin to show small signs of my presence. I will draw lacy patterns on your legs. Then I will move up to your kidneys. If that doesn’t work, I will go straight for your heart. If you prove yourself strong, I will torture your brain. This is war. And I will shoot you with tiny little clots made from your own blood. If I don’t succeed the first time, I will start over until I get it right. It’s one big cycle. You just go through the arteries and the veins.
My name is APS. I will do everything I can to kill you. Your doctor may or may not know anything about me, or my powers. He will think I’m pretty benign, until I become more aggressive. How sad for you, it may be too late. How sad for your family. If your doctor does decide to fight me, then I become stronger. For no man can tame me. You can arm yourself with the best medications out there, but that won’t stop me from trying to take you. If I really want your life, it’s mine.
You’d better warn your family and friends, just incase I’m successful this time around. You should tell your doctor that, he is going to look like a fool when he realizes he should have listened to you, especially when your family decides to take him to court. Make sure you have your last will and testament ready, just incase. I may let you live a long life, but it may be a difficult one. Or I could take you tomorrow. Don’t ever forget my name. It’s Antiphospholipid Antibody Syndrome. But you can just call me APS!
Who I'd like to meet:
Have questions or want to learn about APS? Please go to APSFA, the home of the APS Foundation of America, Inc. The APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, support, research, patient services and public awareness of Antiphospholipid Antibody Syndrome.
Please watch this video on Lupus. Much of the same thing needs to happen with it's sister - APS. Alliance for Lupus Research
Add to My Profile | More Videos
APS or Antiphospholipid Antibody Syndrome MySpace Page & Blog by APS Foundation of America, Inc. is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
Based on a work at www.apsfa.org.
Friend Space (Randomized)
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R.I.P. MOM I LOVE AND M…
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julia
julia celandine
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jenni
Jennifer McDonald
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Jesse Cale
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*becca*
Becca Gilliam
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Jennifer Paige
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**~Ally~**
Alison Robson
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Endo Aware Girl
Gina W.
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Firebear and Angel
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Seal
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WE NEED TO FIND A CURE!
Kristen Ruse
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DAUGHTER OF A KING.
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BLACK LOTUS CLOTHING
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LeeAnn
LeeAnn Messer
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whiteyjr01
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Christina Milian
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My Life Works Today!
Pacific Northwest
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The Tribute Lady
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Artists4Charity
Artists Charity
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Autoimmune Hepatitis Aw…
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LupusMCTD Foundation o…
Kathy Walters
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Annell
Annell Butz Grant
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"Fibro-My-What?!" Writt…
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The OFFICIAL Ambre of V…
Ambre Lake
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Supporting One Another
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Rest in Peace Rosa
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Eddie
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♥ jenn ♥
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♥Rhonda♥
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Jeremy
Jeremy Verdugo Johnstone
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~~MOMMY2JAXON~~
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Kimberly
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Bejaye & Lupus
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Tomiko
Tomiko Fraser Hines
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Angeleyes
Deborah Harris
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Factor V Leiden
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kristen*[be my birthday…
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♥Annie, P.I.♥
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Say Goodbye To Hollywood
Kimberly Kilvington
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rita
Comments
Nov 26 2009 2:58 AM
Nov 26 2009 2:36 AM
Nov 25 2009 11:55 PM
I wish you and your family a Wonderful Thanksgiving..
Love
~Bella
Nov 22 2009 2:08 PM
BKJ
http://www.youtube.com/baikamarajr
Nov 22 2009 2:08 PM
BKJ
http://www.youtube.com/baikamarajr
Nov 22 2009 2:07 PM
Nov 20 2009 5:04 PM
:)
-Jesse Cale
Nov 17 2009 1:39 AM
Have a wonderful week!
Thinking about you...
Let the peace of Christ keep you in tune with each other, in step with each other. None of this going off and doing your own thing. And cultivate thankfulness. Let the Word of Christ—the Message—have the run of the house. Give it plenty of room in your lives. Instruct and direct one another using good common sense. And sing, sing your hearts out to God! Let every detail in your lives—words, actions, whatever—be done in the name of the Master, Jesus, thanking God the Father every step of the way. -Colossians 3:15-17
Love you
~Bella
Nov 12 2009 8:11 PM
'Worry looks around, sorry looks back, Faith looks up.'
This angel is sent to you. Send this to your friends and have Faith for better things to come to you..
Love, hugs and prayers, DebrAngel xoxo
Nov 11 2009 11:03 PM
You and you family have a beautiful week...
Love you
~Bella
"All things, whatsoever you shall ask for in prayer, believing, you shall receive."-Matthew 21:22
Nov 11 2009 11:02 PM
Thanks Comments
Myspace Comments - Myspace 2.0 Layouts
Nov 10 2009 2:17 AM
Love and thoughts, DebrAngel xoxo
Nov 10 2009 2:17 AM
Nov 6 2009 12:53 AM
Loves De & Angel Precious
Nov 6 2009 12:53 AM
see more Lolcats and funny pictures
Oct 29 2009 4:57 PM
Have a beautiful day!!!
Love you
~Bella
"Be still, and know that I am God" -Psalms 46:10
Oct 23 2009 10:38 PM
Thanks for your request. I understand your battle as I am both a Lupus and RA (as well as, Fibromyalgia) warrior and your battle is all our battle. Be well and take care of you my newest friend.
Oct 23 2009 10:38 PM
Gentle hugs and lots of love.
Oct 21 2009 7:21 PM
MySpace Graphics & MySpace Layouts
Oct 21 2009 7:20 PM
Have a wonderful rest of the week and weekend!
Love you
~Bella
"Blessed be the Lord,who daily loadeth us with benefits." -Psalm 68:19
Lord,each day is a brand-new gift unspoiled,unblotted. Help me to be in wardly open to what you have for me today.
Oct 18 2009 8:34 PM
13th International Congress on Antiphospholipid Antibodies
"Antiphospholipid by the Beach"
When: April 13-16, 2010
Four days of the most up-to-date evidence-based medicine and state-of-the-art scientific sessions on Antiphospholipid Antibodies and the Antiphospholipid syndrome.
Participants included: rheumatologists, hematologists, OB-Gyn specialists, neurologists, dermatologists, cardiologists, pathologists, researchers, laboratory scientists and clinicians dealing with Antiphospholipid Syndrome, SLE and other related autoimmune diseases.
There will be a patient session on Wednesday April 14, 2010 from 5:00-6:30PM CT
URL for more information on costs, hotels & location here: http://www.utmb.edu/apla2010
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, APLA, conference, CME, international
Oct 18 2009 8:09 PM
HE ARRIVED THIS MORNING, WE HAD PRAYER; SPENT SOME TIME JUST
TALKING, AND HE HELD ME FOR AWHILE BECAUSE I WAS HAVING A BAD MORNING.
THEN, HE WAS ON HIS WAY TO YOUR PLACE.
He gets to your PC, escort Him to the next stop. Please don't allow Him
to sleep on your PC. The message He is carrying is very important and
needs to go round. May God bless you as you do this- AMEN.
Say a prayer, and then pass Him on to bless others. Our assignment is to love and spread the gospel throughout the world.
Have a blessed day and touch somebody's life today! I just did. He's walking around the world - via e-mail!!
Pass it on! So He can get there ...
Oct 18 2009 8:09 PM
glitter-graphics.com
Oct 18 2009 8:08 PM
Oct 18 2009 8:08 PM
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