God is good. God is LOVE. Trust him, lean on him, he loves you. Boey continues to inspire us from heaven to BELIEVE.
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Our entire family woke up for the first time on the morning of her birthday with total joy in our hearts after Boey’s beautiful entrance into heaven. We couldn’t believe we’d ever feel that way day after day of unbearable pain and heartwrenching grief. We believe with all our heart that God was allowing us to feel just a small amount(we’ll never fully know on this side of eternity)of the joy Boey is feeling as all of Heaven and Jesus threw her the most extraordinary glorious phenomenal birthday ever!!!
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Boey was always so excited to share her vision of her big brothers in a band one day and she said she would be the singer!! She’ll be singing her song from above and her brothers will carry on her legacy and spirit in all they do. They are honoring her in the most awesome beautiful way.
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We have walked through the fires of trial and suffering and are here to tell you with a very real and raw heart that God loves you more than you can ever imagine. Even through tragedy and heartbreak we have experienced his amazing love, strength, joy, mercy and grace. We will grieve the rest of our lives until we are reunited with our precious Boey, but until then we are hanging on with all of God’s strength.
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Boey fought so hard for a cure and her legacy and the foundation is so important. No child should EVER have to suffer from this hideous monster.
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With each passing day, the pain becomes more unbearable. We miss our extraordinary precious daughter so much, there are simply no adequate words to express our heartwrenching unexpected tragic loss. We survive the days by living to honor God and Boey’s amazing legacy and everything she stands for. There are no earthly words that can ever adequately express how deeply I love my baby girl.
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Cancer messed with the WRONG family when it messed with our Boey. We are living every day to make sure this nasty evil hideous disease is completely annihilated! I’m so sick of seeing our beautiful children suffer and die from this demented sick and cruel demonic beast
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Boey showed us all how to fight, love and live like there’s no tomorrow, to never give up and to always BELIEVE.
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If our beautiful and brave girl could sing praises her to King and proclaim “I love God” while enduring the horrible pain of a broken hip and brain tumor from this devastating disease…we can over come anything this temporary world throws at us.
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Nothing brings our family more happiness than watching our baby girls dreams come true right before our eyes.
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Around November of last year me and my beautiful Boey were at one of her favorite restaurants discussing her dreams of how many ways Boey Bears can help find a cure and help other families going through the nightmare of a cancer diagnosis. Boey lived for helping her little friends and if the hospital would’ve let her she would’ve been there everyday offering her Boey Tude encouragement and spunky never give up attitude passing out bears, cards and balloons.
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Boey was radiant that day in the restaurant. She was sparkling and sooo happy that she was finally feeling good enough to be a part of making her dreams become a reality. Her big beautiful brown eyes spoke volumes about how excited she was to get started on Boey Bears and what she wanted from this charity that meant everything to her. I watched in awe as she began to write down her visions, goals and dreams on a notebook
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I remember when Boey said to me “mommy, it’s really important that all my little friends are spoiled with love like I am cause that’s what gets me through the horrible chemo”.
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Boey’s heart was so pure and that’s exactly what our organizations will stand on ..perfect agape heavenly love. Boey was a beautiful vessel of God’s love and her amazing story will forever impact lives. We are honored and blessed to carry on our baby girls amazing inspiring beautiful legacy.
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I keep telling God ok..jokes over, bring back my baby girl:(. But that’s not working out to well..it all is very surreal that she’s not here..I keep thinking she’s at grammies on a very long tea party having fun with all her girlfriends and I need to pick her up. The pain of missing her is excruciating
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Just last year our spunky determined passionate warrior princess just happened to come across the Oprah show while she was searching for one of her favorite kid shows. All the sudden I walked in the room and Boey had tears streaming down her face. I’ll never forget the look of shock and horror in her face as she sadly cried out “mommmmyyyyyyyyyy noooooooooooo how could this lady give Oprah a million dollars to Africa when me and my friends are being tortured from chemo and dying from cancer…doesn’t this lady know we need a cure mommy? We have to do something NOW mommy!!”
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Boey had fought relentlessly for a cure even through grueling treatment, but now she was in remission and nothing was going to get in her way of finding a cure! Boey and I got on the internet and searched for ways to raise money for a cure and that’s when we found cure search and the CCA Bill. Boey was so excited to find this promising bill that would provide 150 million(not enough by far but it‘s a start)towards pediatric cancer research and cure. For the first time, Boey was filled with hope and more determined than ever.
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Even when faced with the devastation in May of 07 of a relapse and knowing what lied ahead in battling this evil beast she perservered. She walked the hallways of the pediatric oncology unit with Sen Wyden introducing him to all her warrior friends along the way. She told him how horrible chemo and radiation were and how it breaks her heart to know all her little friends are suffering. He promised to do all he can in the fight for a cure.
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Heaven is where our hearts are, but for now I believe that God has a reason for all of us still being here. We are watching our daughter’s dreams, goals and passion in finding a cure glorified before our eyes and it’s the most gratifying feeling in the world. Boey taught us how to live, laugh, and love. She taught us to never ever give up on yourself or God and no matter what always believe. We will fight for a cure and carry on her amazing legacy with the same grace, determination, strength and faith that she did. We will live to honor her and all she fought for.
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Boey was so wise beyond her years. The love for her King radiated from her beautiful spirit and gorgeous eyes even through the worst of her suffering. There truly is nothing in this world more powerful than a child who knows the voice of her heavenly father. Boey knew his voice and gave him the glory at the young age of only 8 years old. Truly divine.
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December when she was lying on her little chair with a broken hip and recovering from brain surgery she never once complained or asked why did I just have a tumor removed from my head guys? She NEVER ONCE asked us anything about what happened, she never expressed fear or sadness….all she would say with her big beautiful Boey smile was “I love God”. She had a peace that surpasses all understanding, she was divinely connected to her King. She is a beautiful vessel of God’s love.
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Boey always had a way of discerning someone’s heart and whether they were real or not. Nothing is more important than God, family and friends because in reality, they are the true celebrities in your life. They are the ones that love you for you no matter what and are always there for you. Boey had matured past making stars her idol because she knew the truth, they are just people like us. Other people tried to convince her to call certain stars and she would say No I don’t want to, I want to play with my friends. It was so funny to see the look on people’s faces. Boey didn’t care about stardom..she could discern who was real. She loved and lived for relating to people on a heart level. The most important people in her life were Jesus, friends and family.
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The pain of missing her is excruciating. Our hearts are shattered and we are trying to understand. I never expected this to happen.
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Boey didn’t spend one day in remission thinking of herself. She used everyday to fight for a cure and to encourage and instill the “BoeyTude” “Believe” “Never Give Up” attitude in all her little warrior friends at the hospital.
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God has blessed us with three beautiful amazing children
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To my sweet precious daughter, I agape you
The moment that I knew you had died,
My heart split in two,
The one side filled with precious memories,
The other died with you:(
I lay awake at night,
When the world is fast asleep,
And take a walk down memory lane,
With abundant tears upon my cheek.
Remembering you brings me pure joy,
I have beautiful visions of your beauty every day
But missing you is raw agonizing heartache,
That never ever goes away.
I hold you Boey tightly within my heart,
And there you will always remain,
Other lives have gone on without you,
But for me my life has stopped and will never be the same.
For those who still have their children,
Treat them with tender love and care,
You will never know the emptiness,
Till the day you turn and they are no longer there.
~
We know Boey is beaming with heavenly pride as she gazes into her Kings eyes and he says to her "thank you for showing my people on earth how much I love them my precious daughter”. The response we are getting is exactly what she would’ve wanted, you are honoring her in the most beautiful way and for that we are eternally grateful.
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We are so proud of our Boey girl. Boey = pure agape love and she radiates Christ’s love. She is pure joy and love, and a smile that lights up the world. She is our hero. We love our baby girl so much it hurts.
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Boey loves fashion with a passion
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She’s amazing!! Let her strength, radiant spirit and Faith inspire you to live life to the fullest every single second and BELIEVE that there is a God that loves you
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Feed the Boey!!!
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Quotes by the Byers' Family Regarding Boey's "Chrissy" aka Chris Daughtry
We would watch [American Idol] as a family when Boey first lost her hair. She saw [Chris Daughtry's] bald head and immediately identified with him. "Look mom, he is bald like me!" Then she would root for him and follow him each week and fell in love with his voice.
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Chris (Daughtry) found out about my little girl in Oregon and contacted us to lift up her spirits. It was amazing and heart-felt. He even went as far as to give her his phone number and told her to call whenever she wanted. It was such an encouragement to us and gave us something else to think about and talk about instead of treatments
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I remember one time he called just as she was going in to radiation and sang her favorite song to her. He comforted her in her time of need. We even made a CD of all of his American Idol performances for her to listen to while she went alone into the radiation chamber to have her head bolted down onto the table and have her sinus area blasted with the radiation. She listened, alone and we watched her on the monitors outside the chamber. Chris singing suspicious minds signified that the treatment was complete for the day. She was 6 years old and yet his voice brought comfort to her as she lay there, by herself, unable to move with intimidating robot-like medical equipment buzzing and whirring and humming about her head. Other kids her age would need sedation but not our Boey; she was able to endure 28 days of radiation without sedation! This was in no small part to the comfort that Chris' voice brought. The fact that he talked to her solidified her relationship with him. It was not a large amount of time but the thoughtfulness was beautiful and the amount it encouraged us. It was only in small increments of kindness and for this reason I don't think Chris ever fully realized how powerful that was.
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She made videos emulating his performances and videos talking to "her Chrissy." It was sweet and heartwarming to see; a beautiful thing that we desperately needed in such horrible times. It served to give us hope and happiness. We also looked forward to seeing him in person at the American Idol concert. When we did he had the whole crowd, "Say Hi to my friend on the count of 3…HI BOEY!" to the elation of our little warrior. Then we got to meet him backstage and Boey had an awesome time talking face to face with her friend on the phone!
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There were many die-hard fans that screamed and fawned over this new "superstar." Boey made us laugh several times when her happy face turned to a scowl or puzzled look and she would ask such questions as, "what is wrong with them…they are sooooo weird…Its just Chrissy." She was taken aback and did not understand it. She was very grounded; even more than I. I remember being prideful when we were ushered into the venue by the bouncers and the v.i.p. people were escorted out and we got personal time with the band. Not Boey, she made a bee-line to her friend. She remembered him as her friend that sung a song to her while she had to endure radiation. She enjoyed being introduced to his bandmates and loved relating especially to Joey who also treated her special.
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She related to them on a heart level and I don't think she was that interested in autographs or other "proof" that she knew them. That's ok I took care of that department. I enjoyed that part. I also appreciated Chris for his kindness to my family and Joey especially for dancing with my girl. I also enjoyed the special treatment. Boey just liked them as a friends. She related to them in the correct way I believe.
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Chris is a skillful singer and Boey loved that and loved his success for him; however she appreciated him for his expression of love towards her. I think we have lost the meaning of the word "love" in our society. Everyone loves this band or this actor or this show. Love?
Boey loved her Chrissy and it was not because he was anything else but because he extended kindness to her. She was not impressed by his fame as a matter of fact it was a bit annoying because she sensed the exaggeration in that. It was not "real" as she said. She preferred to relate on a heart level. I think Boey had it right.
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Boey has been telling us what she will do when she sees Chris for the first time. She says, Mommy I think I am going to be totally hyper!! I am going to Dance the Daughtry Dance and have him dance with me. It is the cutest thing I have ever seen. Her legs are very week from the Vincristine(Chemo) and she has lost weight so here is this frail and stiff little girl that could break your heart to see but what is she doing; She is wiggling her hips and throwing her arms in the air doing what she calls "the Daughtry Dance." As her Daddy I cant tell you how happy this makes me. Chris your thoughtfullness has given us a lot! You have given my girl something to be happy about, something to inpire her and forget about the Cancer world. She is dancing!!!!! Dance Baby Dance!!!
NM Boey's Street Team *Gail and Alex*'s Details
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Zodiac Sign:
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NM Boey's Street Team *Gail and Alex* THE CONQUER CHILDHOOD CANCER ACT HAS PASSED THE SENATE!!! PRAISE THE LORD!!! Posted at 2:31 AM Jul 17, 2008 view more
About me: “Be Strong, Never Give Up, and If You Believe Then It Can Happen!” -----Janesssa "Boey" Byers
"My life has been blessed. I experienced tremendous blessing but it has not come from what you might think. The first thought one might have could be the support from church and community or that my family was selected to be on Extreme Makeover Home Edition. Yes these were most definitely massive blessings but I am going to write about a different blessing. It is the blessing that I received in a strange way. It was the blessing I received by battling cancer with my daughter.
My family lived with the diagnosis of malignant cancer for one year. This was followed by a worse diagnosis of metastatic cancer resistant to Chemotherapy for an additional year. These pronouncements change your life in drastic ways. I was blessed in a very strange sort of way. In writing this I looked up a synonym for blessed and it said "set apart." That could not be more true!! Our lives were completely set apart and again, in an unusual way it was blessed. To spend so much time with my Boey, to know her like no other and to be the Support and the Love that she needed. Her Mom and I spoke many times how it was such an honor to be there for her. To wipe the vomit, to brush her hair back, to run to the store for the craved doughnut, to find the right crayon, to get the nurse for more pain meds, to pray with and for, to speak words of encouragement ,pride and love and LOVE LOVE LOVE our little girl. Not everyone is blessed with taking the time to do these things.
Those were the difficult times that bonded us so much. To intuitively know what to do to comfort and to extend that to our battling warrior was beautiful and fulfilling. There were also the common times that I took such pleasure in. This shadow of death brings clarifying light that brings energy to spend time on the important things. When Boey went back to school I made it a point to walk her home. That memory is beautiful. I would show up to the school and she would smile and smirk almost uncontrollably. She sometimes would try to be like some of her friends and act embarrassed that her parent was there, but eventually she would stop and she would run to me. We would hug. I would tell her how proud of her I was. I knew the difficult road she had to take in her battle to get to go to school. We would walk home together. As the ritual would go I would always ask to take her backpack full of books and strong, independent BOEY would always decline. I then would take her small hand in mine and we would hold hands all the way through the grass field, past the chain-link fence, on to the street and all the way home. Our hands would remain clasped together as we talked of her day; her friends, schoolwork, recess. It felt so good for her to be living her beautiful life. She would lovingly look up at me with her beautiful brown eyes and I would melt. I can’t adequately describe how good that felt. We kept our hands palm to palm only letting go so she could run to her mama and tell her how her day went. I did that frequently, even coming home from work early because it was so fulfilling. A WALK HOME FROM SCHOOL!!! I am certain that if we never had been in 'cancer world' the cares of this world would have prevented those appointments from happening. Our lives were truly set apart and blessed.
Rachel and I had a conversation... At first we lamented that after she was in remission the first time we did not do enough; we were thinking about things like enjoying Disneyworld or other places we wanted to visit and share. I thought for a moment and then comforted her with my realization that we did not have to; the simple things in life like a walk home, hand- in- hand from school were the destination. They were the fulfillment that the destinations try to capture.
What is life anyways? One definition of life could be the time you spend with the people that you love. With that definition, my family has lived a very full life. We have cherished more completely, loved deeper, laughed more uncontrollably, nurtured more wholly, admired more fully, had compassion more completely than I could ever hope for. I only wish that I could have many more years. I believe that one day in the future I will have a several thousand more years of that and more with NO Cancer and no goodbyes…but I’m going to have to wait for that reunion. I know I am blessed though because of the times I have spent.
I know that I have no regrets for the time and the devotion with which I lived with my daughter. The time that I spent in the hospital and coming home to walk with my daughter is gone but the memory and the assurance that I was a good Daddy is something that I will have forever and ever. The change is also something that is very real and permanent in my heart. It is very strange that I, in a way, can attribute the learning and experiencing of that Love to our battle with Cancer; a very powerful enemy. Jesus said, "in this world you will have trouble. But be of good chear for I have overcome the world." Death has no power over my family’s life. I know where my BOEY is and I will join her in a beautiful reunion one day. On that day I will kiss her and thank her for enduring because she helped me to see and learn what truly being blessed is all about.
LOVE those whom you love."
~Taken from Boey's Daddy's myspace~
Who I'd like to meet:
BOEYisms & BOEYtude
Boey really wanted one on one time with mommy today, we had a special dinner together at her very favorite China Buffet. I was kind of having a serious/funny talk with her about how important all the natural supplements are right now. I explained to her this is why she isn’t getting any mouth sores, she doesn’t throw up, she’s basically kicking major cancer butt. I told her how proud I am of her for taking so much stuff during the day, but every time she does she’s winning this very nasty battle(haha cancer..that was a tiny Boeyism)…After exhaustingly explaining all this, she was tracking with the conversation, totally into it, then I mentioned how important it is that she eats good and continues to do this with all the supplements even after a year of chemotherapy and they know the cancer is gone, because we don’t ever want it to hurt you again and come back. Big Boeyism, she says” WHAT? All this work I’m doing and it could come back?” Um, yeah, I was a little caught off guard on that one….everything just hit me, she really is a fighter and is doing SO much and she is a lifer when it comes to the cancer battle. She pretty much summed it up in that one sentence.
~Boey's awesome Mommy, March 19th, 2006
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Thursday, March 16th, 2006
Today Boey said, “Look dad a new brown pill that I can take; (Its to help kick cancer’s butt.)”
~Boey's awesome Mommy, March 16, 2006
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Boey: “Mom, I think I know why I have cancer”!
Mommy: “Really Boey? Why?
Boey: “Because daddy farts all the time”!!!!
(I’m sure dad will appreciate this one…but it had to be shared….I laughed so hard I cried…just keep up those boeyisms sweetie..you’ll be just fine…and stop farting dad…sheeshhh)
~Boey's awesome Mommy, Feb 28, 2006
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Boey: “What’s with all this cancer stuff going on…..mom, I thought you said I was perfect..?”
Mom: “Boey, you are perfect”
Boey: “Not with all this cancer stuff going on”
Mom: “This is just temporary, you will always be our perfect Boey.”
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Mom looks boey in the eyes and says “how did I get so lucky to get such a special Boey?”
Boey says “Because you are such a special mommy”. ~Feb 14, 2006
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Who would’ve thought Eclipse gum would play such an important role? While accessing Boey’s port for her blood counts (this was when Boey was in "no way are you coming near me with that monster needle" mode, a little too scary) we unfortunately had to gently hold her down(heartbreaking). One of the nurses was gently holding Boey’s head so the other nurse could access her port!! Boey is very sensitive to the saline and heparin flush after the port access and can taste it..yuck..so she always has to have her gum to kill the taste! This time the nurse was holding under Bo’s chin and all the sudden we hear “I NEED TO CHEW, I NEED TO CHEW!!!!” The nurse didn’t realize that Boey was desperately trying to chew her gum while her port was being flushed and felt just a little bad….just a little..but now we are all very aware…let the Bo CHEW!!!!!
~Boey's awesome Mommy, Feb 8, 2006
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Boey finds comfort in hearing her mother’s voice. The very first time they put the I.V into her port for her chemo treatment, she was heard saying “talk to me mommy, talk to me mommy, talk to me…..”
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When the nurse was getting ready to administer Boeys first chemotherapy she asked,”Now honey do you know what this is for?” Boey answered, “For my Rhabdomyosarcoma?” Everyone in the rooms jaw dropped.
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Boey has a pretty big medicine regimen, alot of natural supplements that don’t really taste so good. She has to drink Glutamine every day to protect the lining in her body and protect her from mouth sores, ect. Well, I’m pretty sure we tried every drink at our local grocery store just so we could ensure Boey would drink the magic potion that would protect and heal her body!
Boeyism of the day “Apple Cranberry Cider saved my life mom”! YAAAAHHHHHHHHH!!! We found THE drink…she’s drinking it every day (of course we have to switch up the different flavors) Feb 1 2006
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Before going off to sleep tonight Boey looked at Mommy and said, “This Tumor messed with the wrong Boey! It got all comfortable inside my head and then it made a big mistake and we found out!!” ~January 31, 2006
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Boey had just woke up the day after her very first surgery to remove some of the tumor and could barely move her neck. She was so sore, and so scared. Up until this time, she was ok with everything, showered with gifts and pretty much distracted from the whole reality of everything. I cuddled up with her in her hospital bed and we held eachother and I was trying to figure out what was going on with her neck, and comforting her. Telling her how she is my inspiration and my hero. She looked at me and said in a quiet voice but very serious "I’m fighting mommy, I’m fighting as hard as I can”. My baby would not go down without a fight, and this tumor really did mess with the wrong Boey! ~Boey's awesome Mommy
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“Mom, why are you getting so emotional? Hey Dad!! Mom’s getting all emotional again, could you come take care of this?” January 27, 2006
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hi evryone this is bo i am very happy right now. i have faith that i am healed and Jesus is my healer. I cried when I watched the show and I was talking to Ty. it was the best show ever. He is so funny but made me cry when I saw how sad I was. i want you to know im not sad im very happy. i am in school and have my friends over all the time. i cant wait for my fashion show in two weeks. i love fashion so much. i am eating all the time haha i never got to eat this much becuse of stoopid chemo. i am not gitting chemo right now becuse i won and my dr cant belive gods miracle cause im walking playing and having sooooooooo much fun. please help me and my warrior frends they need you. write your sentr today. i did. please help us find a cure. lets find a cure already. i love you all and thankyou for praying for my healing. love you sooooooo much k bye love your warrior friend boey ~The brave Bo-bear herself, October 27th, 2007
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Boey shared with us why she was so depressed. She said it was because her teeth hurt so bad and she couldn’t eat, it was so heartbreaking…thank God her teeth are now fixed and she’s gained a whole whopping 2 lbs in the last week!! YEAHHH!! Boey, the eating machine haha!! ~Boey's awesome Mommy, September 22, 2007
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"My scriptures are my medicine”
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She said it makes her heart happy knowing how many people love her and are behind her in this fight!! ~Boey's awesome Mommy, September 17, 2007
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I want a cure! Just imagine how all those other kids suffer like me. I see them in their rooms just laying in their beds with nose tubes, gaging...It's horrible what this disease can do to you! I need a cure! It's my biggest dream
~Brave Boey-bear herself
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[The energy in me is] cause we pray all the time. I love praying- it makes me feel good...[I pray for] my healing and sometimes that [Extreme Makover: Home Edition] would come...and you're here!
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MOVE THAT BUS!!!
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I just want to tell all the ids with cancer out there to be strong, never give up, and if you believe, then it can happen!
Brilliant Boey
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HI TY!!!
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A smile's very important when you're going through chemo- it's just such a horrible thing
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Boey was always so excited to share her vision of her big brothers in a band one day and she said she would be the singer!! -Boey's awesome Mommy
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Our beautiful and brave girl [would] sing praises her to King and proclaim “I love God” while enduring the horrible pain of a broken hip and brain tumor from this devastating disease -Boey's awesome Mommy
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Boey lived for helping her little friends and if the hospital would’ve let her she would’ve been there everyday offering her Boey Tude encouragement and spunky never give up attitude passing out bears, cards and balloons. -Boey's awesome Mommy
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Her big beautiful brown eyes spoke volumes about how excited she was to get started on Boey Bears and what she wanted from this charity that meant everything to her. I watched in awe as she began to write down her visions, goals and dreams on a notebook -Boey's Awesome Mommy
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I remember when Boey said to me “mommy, it’s really important that all my little friends are spoiled with love like I am cause that’s what gets me through the horrible chemo”. -Boey's awesome mommy
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Our spunky determined passionate warrior princess just happened to come across the Oprah show while she was searching for one of her favorite kid shows. All the sudden I walked in the room and Boey had tears streaming down her face. I’ll never forget the look of shock and horror in her face as she sadly cried out “Mommmmyyyyyyyyyy noooooooooooo how could this lady give Oprah a million dollars to Africa when me and my friends are being tortured from chemo and dying from cancer…doesn’t this lady know we need a cure mommy? We have to do something NOW mommy!!” -Boey's awesome mommy
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Boey and I got on the internet and searched for ways to raise money for a cure and that’s when we found cure search and the CCA Bill. Boey was so excited to find this promising bill that would provide 150 million(not enough by far but it‘s a start)towards pediatric cancer research and cure. For the first time, Boey was filled with hope and more determined than ever. -Boey's awesome Mommy
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She walked the hallways of the pediatric oncology unit with Sen Wyden introducing him to all her warrior friends along the way. She told him how horrible chemo and radiation were and how it breaks her heart to know all her little friends are suffering. He promised to do all he can in the fight for a cure. -Boey's awesome mommy
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Other people tried to convince her to call certain stars and she would say No I don’t want to, I want to play with my friends. It was so funny to see the look on people’s faces. Boey didn’t care about stardom..she could discern who was real. She loved and lived for relating to people on a heart level. The most important people in her life were Jesus, friends and family. -Boey's awesome mommy
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