I've paid my dues time after time I've done my sentence but committed no crime." I spent eight years 16 hours a day in bed only crime I committed was being born disabled!
Male
44 years old
Tavernier, Florida
United States
Highlights are Web links:
Disabled civil rights lots of information URL: http://sglalonde.tripod.com/
Political letters and legal documentation in View My Pictures! I have Becker’s Muscular Dystrophy.Myspace Group Disabled Civil Rights
November 28, 2007
All Honorable Presidential Candidates,
November 18, 2007
The Honorable State Governors and Lieutenant Governors Faxed,
November 10, 2007
All Members of the 110th US Congress Faxed,
October 6, 2007
All 100 Honorable Senator Faxed,
August 27, 2007
Honorable Presidential Candidates, senators and representatives, Governor Charlie Crist, Lt. Governor Jeff Kottkamp, Congresswoman Ileana Ros-Lehtinen18 District of FL, Senator Bill Nelson, Senator Mel Martinez, Rep. Ron Saunders 120 District of Florida, Larcenia J. Bullard D - FL (39), U.S. House of Rep. FL, 14,16,17,19,20,21,22, 23, 24,faxed.
I am writing about an extreme situation affecting people with disabilities in the State of Florida. This denial of basic civil rights has led to individuals such as myself who are contributing members of society to be confined to their beds 18-20 hours per day against their will. I am asking that you as an elected official tell me how you can help to remedy the situation.
I am a 42 year old man with an extreme case of muscular dystrophy known as Becker’s Muscular Dystrophy. I volunteer at a local elementary school working with young children. I am a mentor, a friend, and an educator. I live in my community, I shop here and I play here just like you. Yet I am dependent upon others for my care as I only have function from my neck up and can not tend to my functions of daily living. Each day I require assistance to bathe, prepare meals, and to be put into and out of bed. Because of things such as the Olmstead Decision and Presidential Executive Order 13217, I have been given the right to live in the community and receive services, rather than being institutionalized away from my family and the community. Medicaid waivers have helped make this a reality for many individuals like myself. Unfortunately, I fell through the cracks as have many other individuals in my situation.
Even though I was placed on the waiver program, was protected by Presidential Executive Order 13217 which entitles me to care in the community, and dollars were set aside for my care, my county subcontracted out these care services to an organization that only did business from 8:00-5:00 daily. This meant that I would be taken out of bed in the morning at 8:00 and put back in bed around 4:00 each evening to face 16 hours in that prison. This is unconscionable. I suffered this unbearable fate for about 8 years and was even forced to pay out of my own pocket if I wanted to get out of bed at all on weekends or on holidays when the agency was closed.
Recently I was placed on another program known as CDC+ which is working well for my care and puts more choice and decision with the individual. However I can not remain quiet as so many others still face the awful fate that I endured for 8 years. Even worse Governor Charlie Crist is now cutting the waiver programs so that many people are being forced off or will have reductions in care. I want to know what you will do to stop these cuts, and also to ensure that those who are on the Medicaid Waiver program will have care that goes beyond the 8:00-5:00 Monday-Friday schedule and that no one will be forced against their will to spend 16 hours per day in bed. I eagerly await your reply.
Sincerely,Scott G. LaLonde presidential candidate Barock Obama is the only one to respond to my presidential campaign letter! Click on Barock Obama's letter to enlarge.
http://www.accessiblesociety.org/topics/ada/olmsteadoverview.htm
At the very bottom of document the cost differential both methods of care. Community-based med waiver and consumer directed care programs wherever possible are less expensive for the taxpayer and better for the individual involved! Think about let's say you're a disabled individual like myself they'll give me carte blanche to be put into a nursing home or institution no questions asked. But like most other people at the time individuals like myself have to find out that are other option they will not tell you. It other words the disabled population is segregated that is why I started Disabled Civil Rights we have a choice to choose where what to live where ever possible. Which is a violation of someone's civil rights to be told where we have to live did not be given any choices!
The commissioners' brief and another, filed by 30 national and seven Georgia organizations, document the cost differential between institutional and community care. For example, the daily cost of care in the mental retardation unit at Georgia Regional Hospital-Atlanta, where the women were confined, was $283 in 1996, compared to the daily cost for community services of $118 to $124. National studies cited in the briefs show a similar pattern. For example, one compared community costs, including housing, of $60,000 per year for a discharged psychiatric patient to $130,000 for institutional care.
The Supreme Court Olmstead decision in layman’s terms two mentally disabled Individuals named Lois Curtis and Elaine Wilson patients were institutionalized criminally insane Word in Georgia. The Supreme Court stated having someone incarcerated against their will when they have not committed any crime against anyone else and not suicidal were illegally incarcerated! What the doctors continually wrote in their report that the two elderly women last named Olmstead said that they were no harm to themselves or other people and should not be in this type of institutional setting approximately 8 to 10 years. The Supreme Court ruled that it was unconstitutional for individuals to be incarcerated against their will when they did not commit any crime or were not any threat or harm to society. On this ruling 30 states tried to appeal it finally gave up because they could find no holes in the Supreme Court Olmstead Decision.
Georgia said they did not have the money the Supreme Court said we do not care it is against the law to incarcerate somebody against their will when they did not commit any crime and are no danger to anybody else including themselves. Supreme Court saw rate through George’s claim an obvious lie.
The Supreme Court Olmstead decision the highest Court system in our nation 9 judges sits on the bench for life. Judges 6-3 ruling that made a legal precedence’s in the United States and that is why they are supposed to be community-based med waiver programs and consumer directed care. And George W. Bush presidential Executive Order 13217of June 18, 2001 of June 18, 2001 stating that disabled people should have the choice of living where they want to instead of having on choice and being put into a nursing home which is exactly what they wanted to do with me. I did not write the law or make it but as far as I am concerned it’s only a piece of paper worth $.10 or less in other words nice wallpaper and that is exactly what it is unless the nation in forces themselves obey their own laws. All law is no good unless it is in forest from my experience and my life this is not happening. I didn’t make these laws but that does not give the government the right to totally ignore them.
That is against the Constitution of the United States of America just because government officials say they cannot afford the community-based med waiver or consumer directed care is working and costs approximately 50% less than in a nursing home and would give more opportunity for jobs in this great nation and cost the taxpayers half as much. Which Florida Governor Charlie Crist is now cutting the waiver programs so that many people are being forced off or will have reductions in care? Which is against the law according to the Supreme Court Olmstead Decision? Community-based programs med waiver and consumer directed care pay through Medicaid and Medicare? In other words they are breaking the law and except for Barack Obama which is only presidential candidate to respond to my letter! I guess the rest of the presidential candidates do not care about Disabled Civil Rights. Wake up and smell the coffee!Sincerely,Scott G. LaLonde ______________________________________________________________________
THE WHITE HOUSE
Office of the Press Secretary
______________________________________________________________________
For Immediate Release June 22, 2009
President Obama Commemorates Anniversary of Olmstead and Announces New Initiatives to Assist Americans with Disabilities
On the 10th anniversary of the landmark Supreme Court decision in the case of Olmstead v. L.C., President Barack Obama today celebrated that anniversary and launched "The Year of Community Living," a new effort to assist Americans with disabilities.
Specifically, the President has directed Health and Human Services Secretary Kathleen Sebelius and Housing and Urban Development Secretary Shaun Donovan to work together to identify ways to improve access to housing, community supports, and independent living arrangements. As part of this effort, later today, Secretaries Sebelius and Donovan will announce several new initiatives including details about increased numbers of Section 8 vouchers and enhanced interagency coordination to address this critical civil rights issue. The initiative also will include listening sessions conducted by HHS across the country to hear the voices and stories of Americans and to keep the President's pledge to be as open and transparent as possible.
"The Olmstead ruling was a critical step forward for our nation, articulating one of the most fundamental rights of Americans with disabilities: Having the choice to live independently," said President Obama. "I am proud to launch this initiative to reaffirm my Administration's commitment to vigorous enforcement of civil rights for Americans with disabilities and to ensuring the fullest inclusion of all people in the life of our nation."
In the Olmstead case, the Court held that the unjustified institutional isolation of people with disabilities is a form of unlawful discrimination under the Americans with Disabilities Act. Since that time, progress has been made. Many individuals have successfully transitioned to community settings, but waiting lists for community services have grown considerably and many individuals who would like to receive community services are not able to obtain them.
To help remedy that problem, the Obama Administration provided over $140 million in the Recovery Act funding for independent living centers across the country. The Administration acknowledges that strides have been made, and knows and accepts that there is much work to do in order to maximize the choices and opportunities for individuals to receive long-term services and supports in institutional and community settings.
The President noted that his Administration looks forward to continued engagement with the disability community to achieve these goals.
Sorry for not having been in touch awhile - been rather busy! Just wanted to say that your valued friendship continues to be appreciated. Have you checked out my MySpace and web site (www.faberoptime.com) recently? Oh and did you subscribe for my free newsletter (using the form on site at page right - high quality, low quantity, no spam!)? You might also like to take a look at some of my vids on my YouTube channel too! www.youtube.com/faberoptime Take care and keep in touch. Best, Faber. "Just a guy trying to make the world a better place."
I had a few minutes and wanted to share some exciting news with all my MySpace buddies.
As many have heard already, I have a new reality show coming out this January on Fox Reality Channel called "Seducing Cindy"! I'm soooo excited for everyone to watch.
In the mean time--- I have a new Facebook page, and a twitter page now.
♥♥♥ My Dearest Darlings, Wishing you and yours so much love and joy over this Thanks giving holiday. Please do your part and post your ECO, for what you put out into the world is what you shall receive back. The time is now to Eco Peace and Love around the Earth combining the Eco and Peace Movements! ♥♥♥ECO...eco...♥♥♥ So my Darlings, roll your sleeves up. Lend A Helping Hand. Carve out more than a Big Bird (sorry Bert and Ernie). Help yourself by helping others. A perfect circle of love. Do you hear the ECO...eco??? ♥♥♥ Eco Peace & Love around the Earth ♥♥♥ xoxoxoxoxoxo www.myspace.com/Ecologyngle www.myspace.com/TerraNadir Gift download "Optimist Creed Song" from Optimist Enfant Evangel to help build the personal strength. www.myspace.com/Ecologyngle Listen to the new cutting edge musical genre Eco Music whose vision and mission is to combine the Ecology and Peace Movement in ONE at: TerraNadir www.myspace.com/TerraNadir Please visit HRH Prince William of Wales website for his Charities Foundation: Prince's Save the RainfoRest Project: www.rainforestSOS.org Stay tuned for " The New British Invasion Tour" by ROCK MANAGEMENT USA www.myspace.com/rockmanagementUSA Woodstock 3 Day Concert in Montreal, CA in 2010 when G8 leaders meet there! Let's combine Peace & Eco Movement! www.myspace.com/musiciansforpeace
The Slackers on tour! Check out the slackers on tour for their new cd, "Lost & Found" available through www.interpunk.com and downloadable at www.whatevski.org Dec 3 - San Antonio - White Rabbit Dec 4/5 - Austin - Flamingo Dec 6 - Houston - Meridian Dec 8 - New Orleans - one eyed jacks Dec 9 - Tallahasee - Engine Room Dec 10 - Tampa - Crowbar Dec 11 - Miami - Churhills Dec 12 - Orlando - The Social Dec 18/19 - Brooklyn, NY - - Knitting Factory Dec 20 - Philadelphia, PA - TLA
Thanks so much for being my friend, Disabled Civil Rights!
I am stopping by to say "hi" and to remind you that in addition to MySpace, you can visit with me on Twitter: http://www.twitter.com/stockvalues and Facebook: http://www.facebook.com/stockvalues . I also have a personal blog on StockValues: http://stockvalues.org .
I write mostly about farming/gardening and stock/bond investing, but also anything else that rattles my cage. Please stop by when you get a chance.
Hey Everybody...I Just Wanted To Say Thank You For Everything You Do. Being The Season For Thanksgiving, We Know It's Because Of You That Keeps Us On Top...So Thanks For All The Support And We Hope You Have A Great Thanksgiving...You Rock.! tess@xfactorygear.net
MISS KNOCKOUT JUST ANNOUNCED AS WINNER!!! 2009 UPSTATE INDIE AWARDS BEST FEMALE HIP HOP
THANKS TO ALL THE PEOPLE THAT SUPPORTED ME SPECIAL SHOUT OUT TO COCO CHYNA AND THE COCO NATION MOVEMENT HEIDY Z TAKIYAH- BETHANY DAVIS- G DASH-SHY HIPS- M J WITH HIS INCREDIBLE PERFORMANCE SHERIDONNA AND J BLACK FOR THE WARM WELCOME!! AND ALL THE PEOPLE WHO VOTED
THANKS!!! MISS KNOCKOUT "YA NEW FAVORITE RAPCHIC!" FURS IN PICTURE BY COCO CHYNNA OF COCO NATION
Highlights are Web links:
Disabled civil rights lots of information URL: 
Online Now!
