I've paid my dues time after time I've done my sentence but committed no crime." I spent eight years 16 hours a day in bed only crime I committed was being born disabled!
Male
44 years old
Tavernier, Florida
United States
Highlights are Web links:
Disabled civil rights lots of information URL: http://sglalonde.tripod.com/
Political letters and legal documentation in View My Pictures! I have Becker’s Muscular Dystrophy.Myspace Group Disabled Civil Rights
November 28, 2007
All Honorable Presidential Candidates,
November 18, 2007
The Honorable State Governors and Lieutenant Governors Faxed,
November 10, 2007
All Members of the 110th US Congress Faxed,
October 6, 2007
All 100 Honorable Senator Faxed,
August 27, 2007
Honorable Presidential Candidates, senators and representatives, Governor Charlie Crist, Lt. Governor Jeff Kottkamp, Congresswoman Ileana Ros-Lehtinen18 District of FL, Senator Bill Nelson, Senator Mel Martinez, Rep. Ron Saunders 120 District of Florida, Larcenia J. Bullard D - FL (39), U.S. House of Rep. FL, 14,16,17,19,20,21,22, 23, 24,faxed.
I am writing about an extreme situation affecting people with disabilities in the State of Florida. This denial of basic civil rights has led to individuals such as myself who are contributing members of society to be confined to their beds 18-20 hours per day against their will. I am asking that you as an elected official tell me how you can help to remedy the situation.
I am a 42 year old man with an extreme case of muscular dystrophy known as Becker’s Muscular Dystrophy. I volunteer at a local elementary school working with young children. I am a mentor, a friend, and an educator. I live in my community, I shop here and I play here just like you. Yet I am dependent upon others for my care as I only have function from my neck up and can not tend to my functions of daily living. Each day I require assistance to bathe, prepare meals, and to be put into and out of bed. Because of things such as the Olmstead Decision and Presidential Executive Order 13217, I have been given the right to live in the community and receive services, rather than being institutionalized away from my family and the community. Medicaid waivers have helped make this a reality for many individuals like myself. Unfortunately, I fell through the cracks as have many other individuals in my situation.
Even though I was placed on the waiver program, was protected by Presidential Executive Order 13217 which entitles me to care in the community, and dollars were set aside for my care, my county subcontracted out these care services to an organization that only did business from 8:00-5:00 daily. This meant that I would be taken out of bed in the morning at 8:00 and put back in bed around 4:00 each evening to face 16 hours in that prison. This is unconscionable. I suffered this unbearable fate for about 8 years and was even forced to pay out of my own pocket if I wanted to get out of bed at all on weekends or on holidays when the agency was closed.
Recently I was placed on another program known as CDC+ which is working well for my care and puts more choice and decision with the individual. However I can not remain quiet as so many others still face the awful fate that I endured for 8 years. Even worse Governor Charlie Crist is now cutting the waiver programs so that many people are being forced off or will have reductions in care. I want to know what you will do to stop these cuts, and also to ensure that those who are on the Medicaid Waiver program will have care that goes beyond the 8:00-5:00 Monday-Friday schedule and that no one will be forced against their will to spend 16 hours per day in bed. I eagerly await your reply.
Sincerely,Scott G. LaLonde presidential candidate Barock Obama is the only one to respond to my presidential campaign letter! Click on Barock Obama's letter to enlarge.
http://www.accessiblesociety.org/topics/ada/olmsteadoverview.htm
At the very bottom of document the cost differential both methods of care. Community-based med waiver and consumer directed care programs wherever possible are less expensive for the taxpayer and better for the individual involved! Think about let's say you're a disabled individual like myself they'll give me carte blanche to be put into a nursing home or institution no questions asked. But like most other people at the time individuals like myself have to find out that are other option they will not tell you. It other words the disabled population is segregated that is why I started Disabled Civil Rights we have a choice to choose where what to live where ever possible. Which is a violation of someone's civil rights to be told where we have to live did not be given any choices!
The commissioners' brief and another, filed by 30 national and seven Georgia organizations, document the cost differential between institutional and community care. For example, the daily cost of care in the mental retardation unit at Georgia Regional Hospital-Atlanta, where the women were confined, was $283 in 1996, compared to the daily cost for community services of $118 to $124. National studies cited in the briefs show a similar pattern. For example, one compared community costs, including housing, of $60,000 per year for a discharged psychiatric patient to $130,000 for institutional care.
The Supreme Court Olmstead decision in layman’s terms two mentally disabled Individuals named Lois Curtis and Elaine Wilson patients were institutionalized criminally insane Word in Georgia. The Supreme Court stated having someone incarcerated against their will when they have not committed any crime against anyone else and not suicidal were illegally incarcerated! What the doctors continually wrote in their report that the two elderly women last named Olmstead said that they were no harm to themselves or other people and should not be in this type of institutional setting approximately 8 to 10 years. The Supreme Court ruled that it was unconstitutional for individuals to be incarcerated against their will when they did not commit any crime or were not any threat or harm to society. On this ruling 30 states tried to appeal it finally gave up because they could find no holes in the Supreme Court Olmstead Decision.
Georgia said they did not have the money the Supreme Court said we do not care it is against the law to incarcerate somebody against their will when they did not commit any crime and are no danger to anybody else including themselves. Supreme Court saw rate through George’s claim an obvious lie.
The Supreme Court Olmstead decision the highest Court system in our nation 9 judges sits on the bench for life. Judges 6-3 ruling that made a legal precedence’s in the United States and that is why they are supposed to be community-based med waiver programs and consumer directed care. And George W. Bush presidential Executive Order 13217of June 18, 2001 of June 18, 2001 stating that disabled people should have the choice of living where they want to instead of having on choice and being put into a nursing home which is exactly what they wanted to do with me. I did not write the law or make it but as far as I am concerned it’s only a piece of paper worth $.10 or less in other words nice wallpaper and that is exactly what it is unless the nation in forces themselves obey their own laws. All law is no good unless it is in forest from my experience and my life this is not happening. I didn’t make these laws but that does not give the government the right to totally ignore them.
That is against the Constitution of the United States of America just because government officials say they cannot afford the community-based med waiver or consumer directed care is working and costs approximately 50% less than in a nursing home and would give more opportunity for jobs in this great nation and cost the taxpayers half as much. Which Florida Governor Charlie Crist is now cutting the waiver programs so that many people are being forced off or will have reductions in care? Which is against the law according to the Supreme Court Olmstead Decision? Community-based programs med waiver and consumer directed care pay through Medicaid and Medicare? In other words they are breaking the law and except for Barack Obama which is only presidential candidate to respond to my letter! I guess the rest of the presidential candidates do not care about Disabled Civil Rights. Wake up and smell the coffee!Sincerely,Scott G. LaLonde ______________________________________________________________________
THE WHITE HOUSE
Office of the Press Secretary
______________________________________________________________________
For Immediate Release June 22, 2009
President Obama Commemorates Anniversary of Olmstead and Announces New Initiatives to Assist Americans with Disabilities
On the 10th anniversary of the landmark Supreme Court decision in the case of Olmstead v. L.C., President Barack Obama today celebrated that anniversary and launched "The Year of Community Living," a new effort to assist Americans with disabilities.
Specifically, the President has directed Health and Human Services Secretary Kathleen Sebelius and Housing and Urban Development Secretary Shaun Donovan to work together to identify ways to improve access to housing, community supports, and independent living arrangements. As part of this effort, later today, Secretaries Sebelius and Donovan will announce several new initiatives including details about increased numbers of Section 8 vouchers and enhanced interagency coordination to address this critical civil rights issue. The initiative also will include listening sessions conducted by HHS across the country to hear the voices and stories of Americans and to keep the President's pledge to be as open and transparent as possible.
"The Olmstead ruling was a critical step forward for our nation, articulating one of the most fundamental rights of Americans with disabilities: Having the choice to live independently," said President Obama. "I am proud to launch this initiative to reaffirm my Administration's commitment to vigorous enforcement of civil rights for Americans with disabilities and to ensuring the fullest inclusion of all people in the life of our nation."
In the Olmstead case, the Court held that the unjustified institutional isolation of people with disabilities is a form of unlawful discrimination under the Americans with Disabilities Act. Since that time, progress has been made. Many individuals have successfully transitioned to community settings, but waiting lists for community services have grown considerably and many individuals who would like to receive community services are not able to obtain them.
To help remedy that problem, the Obama Administration provided over $140 million in the Recovery Act funding for independent living centers across the country. The Administration acknowledges that strides have been made, and knows and accepts that there is much work to do in order to maximize the choices and opportunities for individuals to receive long-term services and supports in institutional and community settings.
The President noted that his Administration looks forward to continued engagement with the disability community to achieve these goals.
“From home to home, and heart to heart, from one place to another. The warmth and joy of Christmas, brings us closer to each other.” ☆ Emily Matthews ☆
May the spirit of Love, the beauty of Hope and the blessings of Peace be your gifts this Christmas Season.
• Happy Holidays to You and Your Love Ones • ☆ You Are Loved ☆ Peace ♥ Love ♥ Light Warmest Wishes Marcelle
Thank you so much for the add! Your support means so much to us! Please feel free to stop by and say hi! We try to respond to everybody! And don't forget: If you like what you hear, send us your e-mail address and receive "New Beginnings" and "Tek No" for free! Thanks again! :) Have a great day!
Thanks for being a part of the GetWrite Mixtape Movement !!! Check out our latest installment in the GetWrite Mixtape Series...Stop by and let us know what you think about it after you Download it For FREE From The following link..Your Support is greatly appreciated.
Peace
Brent Hall GetWrite Mixtapes / R.E.A.L. Music LLC.
Click The Link To Download This MIxtape For Free http://realmusicllc.bandcamp.com/
This SATURDAY Show @-FFC Be With All Your Friends - Day After Christmas Break From Loving Family & Relatives SHOW ----------This Saturdays Show----------
Hi This is Emily, Co-Director of OHOP. Join us for our first Awaken The Bride of 2010. Here is the Schedule Saturday January 9th 1pm-5pm Harp and Bowl Training to register email Joanne at joanne.gomez@orlandohop.org 1pm-3pm Healing Rooms Open to register email Rich at OHOPHealingRooms@aol.com 7pm-9pm ATB Service with special guest IHOP KC worship leader Justin Rizzo and team Sunday January 10th 10am Sunday Morning Fellowship with Justin Rizzo and team 6pm-8pm Prayer Set lead by Justin Rizzo and team Tuesday January 12th 2pm Florida HOP Leadership Summit with Mike Bickle, Executive Director of IHOP KC and Justin Rizzo and team 7pm ATB Service with Mike Bickle and Justin Rizzo and team You must REGISTER for the Tuesday meetings. Email Emily at Emily.Sarmiento@OrlandoHOP.org with the following NAME: EMAIL: HOW MANY IN GROUP: These are all FREE EVENTS. Remember you can follow the Orlando House of Prayer on FACEBOOK, Twitter, MYSPACE and at our new website www.orlandohop.org
Highlights are Web links:
Disabled civil rights lots of information URL: 
![Lost In Atlantis [SHOW SATURDAY @ WESTGATE!]](http://c2.ac-images.myspacecdn.com/images02/45/s_b4f4d35d8f394666bff37c40224d5485.jpg)
Online Now!
