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  • E-Advocate Network

  • 37 / Female
  • Centennial, Colorado, US

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    THE RIDE OF HIS LIFE: AN INTERVIEW WITH CHRIS KLUG

    After years of training as a professional snowboarder and exteme sport athlete headed for the Olympics, Chris Klug developed Primary Sclerosing Cholangitits. On July 28th of 2000 he received a liver transplant.

    Freeriding Baldy 2006, Andrew Wilz Photo



    Click here to visit the Chris Klug Foundation here on MySpace for more info on donor awareness.

    E-Advocate: When you received your Olympic gold medal you became a champion to athletes around the world. Now you help save lives as well. What was you inspiration?

    Chris Klug: I’ll never forget my six years on a transplant waiting list, hoping and praying for a second chance. My life was put on hold and I did not know what lay ahead. 100,000 people across the US are currently waiting for solid organ transplants, sadly seventeen die daily waiting. Chris Klug Foundation’s goal is to “Eliminate the wait.”

    In a fun way we’re hosting events across the country to educate everyone about the importance of organ and tissue donation. I always loved snowboarding. Through snowboarding I’ve been provided a tremendous platform to help make a difference to those waiting for a second chance. Every chance I get, I wave the banner of organ donation. I hope to compete in my third Winter Olympics in 2010 and help represent the transplant community and encourage everyone to register as an organ donor and provide hope to those going through the transplant process. (more interview below)

    The video that says it all:



    E-Advocate: Was there a key point after your surgery that you remember knowing you were going to rise to such incredible athletic heights?

    Chris Klug: As soon as I awoke from my six hour liver transplant surgery I felt like a new engine got dropped in me. I knew I was going to make it back. Ironically the competitive snowboarding season following my transplant was one of my best. I was on the World Cup podium four times and won a National Championship. I attribute this to the fact that I was racing for my life just a few months before and now I was racing my snowboard again. It truly put things into perspective for me and made me realize how fortunate I was to have received a second chance to do what I love.

    E-Advocate: What are the primary goals of the Chris Klug foundation and how did your personal experience shape those goals?

    Chris Klug: Sharing the life-saving message of organ and tissue donation with everyone. Through our Donor Dudes events on every high school and college campus across the country, CKF hopes to educate young people about the importance of sharing their donation decision with their family. (More interview below)



    The Donor Dudes are here on MySpace! Just click here to find out how to become a Donor Dude.

    E-Advocate: Signing up to be a donor can impact the lives of many. How can someone help spread this message through your foundation and sign up?

    Chris Klug: Get involved, team up with CKF and host a Donor Dudes event at your workplace or on your campus. Share the message with your friends and family. Together let’s eliminate the wait.

    E:Advocate: Your key event is the Summit for Life. How does this event further your personal message?

    Chris Klug: First, the Summit for Life is an awareness and educational event. Secondly it is the primary fund raiser for CKF, so we can continue our organ donation outreach through our Donor Dudes events.

    E-Advocate: When someone becomes a racer or sponsors a racer, how does this impact the lives of those in need of a transplant?

    Chris Klug: Sponsoring a racer is an opportunity to share the message of organ donation. The funds raised from S4L racer pledges help CKF continue our important donor education outreach. CKF will host twenty-five donor awareness events in 2008 promoting donation at events such as the Winter X Games, Vans Warped Tour, FIS Snowboard World Cup and high school and college campuses across the country. We hope to double the number of Donor Dudes events in 2009.

    Aspen Sojourner Magazine 2006, Nora Feller Image



    The Summit for Life is an annual event with over 500 climbers making their way up Aspen Mountain at night. Join them, sponsor them or just have a good time!

    "They will climb 3,267 vertical feet – over 2.5 miles uphill and at night! Racers can choose their own lighting and non-motorized equipment like snowshoes, skins or other creative gear. Go at your own pace! Racers of all physical abilities and ages are welcome to participate!" Click here to learn how to be involved with Summit for Life and support organ donor awareness.

    Pics from last years event:






















    ACTIVIST AND NONPROFIT RESOURCES

    .. Change.org launched Jobs for Change for those looking to go into a nonprofit field. As a support for the social sector, Jobs for Change has high aims to bring new talent, new business partners and new exposure to social change.





    DIOSA COMMUNICATIONS WEBINARS FOR NONPROFITS..

    The E-Advocate highly recommends this informative and effective webinar for all nonprofits on MySpace. You will learn design and communication strategy as well as how to use the viral properties of today's internet for fundrasing and building your support.

    click here to sign up!

    Created by the Nonprofit Organization MySpace and Diosa Communications, this webinar will increase your reach and effectiveness in today's online world.

  • Music

    The content of the interviews posted on the E-advocate are the opinions of those who are interviewed, and not that of the E-Advocate itself.

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The mission of this new MySpace is to highlight the MySpace users who are making a difference and sharing their insights. Meet the heroes who are breaking the mold, changing lives and bringing good into the world.





Click here to sign the Care2 petition in Eric's name.



EricMemorial


In Memoriam: Eric De La Cruz, July 4th, 2009, Rest In Peace

Eric De La Cruz raised the bar on American courage. His family continues to shine a light on love. Due to strength of will, he and his family would overcome obstacles few could navigate, lead an international community of thousands, and ignite others admiration and heroic passions. His passing sparked change.

The need was singular: a heart transplant to save Eric's life.

"Please get the word out about my brothers plight. He needs a heart transplant. Healthcare red tape. Please help save #Eric

Their story is profoundly American. Only in the United States do we develop the rapid technology needed for the De La Cruz's triumphant and inspirational campaign, but also the unacceptable healthcare system leading to their heartbreak.

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Eric's sister Veronica De La Cruz built a humanitarian online community for Eric's heart with some of the strongest bonds I have seen in a live or online campaign. Supporters experienced in real time each blockade the De La Cruz family faced. Despite the crisis, her continual dignity and love for her brother reminded many how to love. Eric pushed on.

It began when Eric was 22 years old, in school part time and working entry level. These rarely offer health insurance or pay that can cover premiums. He was one of the 30% of our millenial generation without insurance. He was healthy, played hockey. He then grew fatigued and was diagnosed with severe dilated cardiomyopathy.

sarah_eric


Eric's condition worsened in the years after his diagnosis, leading to the eventual recommendation of a heart transplant. Every day Eric survived was a victory to him and the family since then.

Nevada does not have a heart transplant center. This unleashed a black hole. With a pre-existing condition, Eric's only insurance option had been Medicaid. Medicaid is not federally controlled or portable across state lines due to state's self-determination. The transplant was not covered.



Pleas for Eric's life were Tweeted from celebrities such as Demi Moore and P. Ditty. As the healthcare red tape reached nightmare proportions, the community grew stronger and faster. Beautiful friendships were forged. Hundreds of photos and cards were sent to Eric. Together supporters created videos, Facebook groups, and Flickr streams. Touched by Eric, supporters created the "No More Red Tape" campaign and petition.

Eric even inspired one of the toughest internet personalities to sing:



Eric had applied and was rejected twice for Social Security Disability status for coverage under federal Medicare, which represented his best hope of coverage that would permit his transfer to an out-of-state transplant center. And, worse yet, his next appeal was set a year in the future, time he certainly did not have.

"My friends, ... Senator Reid needs to know that there should be a change in our flawed health care system. We are praying that in this instance Nevada and California will work together so that Eric can get on the transplant list."



New champions were inspired whose interventions where heroic if not legendary. Trent Reznor of the band Nine Inch Nails is now one of our great humanitarians for his emergency fundraising work for Eric. He came to the rescue when Eric finally received Medicare, yet Medicare was deemed insufficient by their transplant center of choice. Hospitals can inflate any price and turn away any private or public plan they feel will not pay the entirety.

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"Eric's situation shines a bright light on a broken healthcare system, and his particular set of problems are being addressed on the political front, aiming for reform in addition to the need for immediate financial help to keep him alive TODAY. I think we can help with the latter. ~ Trent Reznor

The De La Cruz family was left to raise the remaining cost of the heart transplant. Trent launched a feat of brilliant fund raising ingenuity that raised close to $500,000 in two days and over to $900,000 in a few weeks. His fans were moved by Eric's story in monumental form. Janes Addiction and Tony Hawk came on board. Eric was transported and admitted to a hospital in Los Angeles. NIN's gracious fanbase went above and beyond and joined Eric's campaign with passion. The top donors received VIP NIN pre-concert access to the show of their choice. The tour sold out of VIP packages. These are at one:



Hanging in there, Eric wrote a thank you note to Trent. It encapsulates what we all believe about Trent and Eric, "Words can not describe.." Despite devastating complications leading to VAD surgery to keep him alive, Eric remained mentally strong and Veronica remained positive:

"He even says he wants to try to play Scategories! HUGE improvement. He hasn't had energy so I am happy to hear."

Their love was a light:

"With one miracle after another. Thanks to everyone who has stood by our side and supported us. Its been a lovefest on the web. We are grateful."



July 5th, 2009: A day of shock that will not be forgotten by thousands. Veronica posted her goodbye to Eric after he died on our nation's birthday. He did not survive recovery from the VAD surgery, which was his only hope to stay alive. The De La Cruz family's pain was felt and candles were lit for them around the world.

guardian_angel


What is most uniquely American about Eric's story is that in other developed countries, more than Eric's courageous memory would be alive. In America, the true heroes in the battle for healthcare are the 18,000 uninsured who die per year. They have fought hardest, just to live. The De La Cruz family continue to fight so other families do not suffer as they did. Veronica tours the country speaking of Eric's story, and traveled to Washington D.C. to discuss healthcare reform.

According to a Harvard think tank other countries spend half of what we do on healthcare and have higher survival rates. Any single one of these regulations of other developed countries would have saved Eric's life: Premium costs attainable to entry level workers, an accessible federal plan, or the elimination of pre-existing exclusions.

There are two ways to grasp this. Statistics:

healthLifeEx


Or by opening your heart:

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With one third of our younger generation uninsured, a circumstance similar to Eric's could strike down many young hopefuls in college.

During Eric's life, Veronica lovingly called Eric's supporters "Eric's Twitter Army." After witnessing first hand what the US healthcare system did to the De La Cruz family, Eric's Twitter Army is there to fight for change in his name. They are there so a healthcare failure of this magnitude will not happen to another family. They believe in his memory and life.

Please sign Veronica's Care2 petition to stop the skyrocketing cost an discrimination against pre-existing existing conditions in our healthcare system. As her brother's legacy, she wants no one else to suffer as Eric did.



"Eric, like many others, have fallen through the cracks. Our leaders need to be made aware that we need change and they need to do the right thing." ~ Veronica De La Cruz"

If you are on Twitter, please follow @VeronicaDLCruz to keep up to date on the campaign. To learn more, click here to visit the Lifegiver Project.





The E-Advocate Action Center: Just read an interview and want to do something about it? Visit the E-Advocate Action Center on the Change Community for all of the actions and personal commitments that relate to the E-Advocate interview causes.



Who I'd like to meet:

Comments

Displaying 25 of 707 comments
  • Nov 8 2009 11:37 AM

    Just wanted to drop by and say Hi =)

    Have a Fabulous Day

    And remember we are here to talk anytime if you ever need to, anywhere from personal issues, to money or career help and and not to forget other chartiy workers because we know how hard it is to fight for a cause.

    "Your Never Alone, There Is Comfort In Global Togetherness"

    Take care,
    ~Michelle Short

    My personal motto:
    'Whatever you do today, do it with Greatness and Pride.'


  • Oct 30 2009 12:02 AM

    Help end world hunger
    Have you played?
  • Oct 30 2009 12:02 AM

    '
    one tear falls
    and the world is healed

    one tear falls
    and your love is sealed

    one tear falls
    and the layers are pealed

    one tear falls
    and your beauty revealed



    one tear falls...
    (c)  jim cole  10182009
  • Oct 11 2009 8:31 PM

    Thank you for adding Dreams Do Insprie Kendra Kepp up the great work you are doing
  • K

    Oct 11 2009 6:44 AM



    "Your done, once you're a surfer you're done. You're in. It's like the mob or something. You're not getting out." Kelly Slater Creative Commons license: http://www.flickr.com/photos/candiedwomanire/54519246/sizes/l/
  • Oct 8 2009 6:16 AM

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  • Sep 27 2009 6:55 AM

    See you in the land of hope and dreams


    Bruce Springsteen and The E Street Band photo: www.morethings.com



    Bruce Springsteen - "Land Of Hope And Dreams" (Live in Barcelona)



  • Sep 24 2009 1:09 AM

    Hey E Advocate, just checkin in to see how you're doing and thank you from my heart for supporting my Scarred For Life child abuse project! Jimmy Browder

  • K

    Sep 18 2009 4:16 AM


    .. "Happiness is the only sanction of life;
    where happiness fails,
    existence remains
    a mad and lamentable experiment."
    George Santayana
    ..
  • ~E~

    Sep 18 2009 4:16 AM


    Image Hosting by imagefra.me
    ~NAMASTE~
    ~We are All One~
    ~Soulmates In This Place & Time~
    ~Peace Love & Light Hugs~Eve
  • Sep 15 2009 1:13 AM


    Be happy and laugh often...  Life is truly beautiful! Very nice to meet you...


    Love,Peace&Light  ~Andrea~
  • Sep 12 2009 8:22 AM

    Thank you for being a friend!  Hope you will join us at our blog and also ask your friends to find out what the insurance companies don't want you to know! Single-Payer is the difference between TRUE Universal Health Care and phony schemes for private insurance companies to continue business as usual. 

    If you want REAL healthcare reform that will lower and control costs and affordable, comprehensive healthcare for ALL Americans - nobody out, everybody in. Take Action NOW! It's more important than ever.  Tell the White House and Congress to stop catering to the insurance industry middlemen who rob us of our healthcare dollars and add no value to healthcare and to support a Single Payer National Health Plan NOW! 

    Check for latest Action Alerts and links at our page. 

    SEND YOUR FREE FAX TO CONGRESS AND THE WHITE HOUSE HERE
    www.1payer.net/action-alerts/send-a-free-efax-to-policymakers.html


  • Sep 10 2009 5:03 AM

    Namaste welcome.



  • Sep 10 2009 5:03 AM

    I wanted to stop by to show my love and support and wish you a wonderful day! LOL Tammy
  • Sep 6 2009 5:50 AM

    Thanks!!!
  • Sep 6 2009 5:42 AM

    Hope all is well and you're having a great week  :-)
  • Aug 30 2009 7:38 PM

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  • Aug 2 2009 1:08 AM

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  • Aug 2 2009 1:08 AM



    {Please Repost As Widely As Possible. This Person May Be Hurt, Need Help, Or Be In A Bad Situation}




    Reply To: Ophelia's Oblectation ƸӜƷ myspace.com/413931494



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    I am hoping others will help me in this search; a dear person is deeply hurt, and he is missing...

    No one has seen him or spoken to him since late morning on Tuesday, July 28, 2009. We are all distraught and need your help...he loves to fish, loves Blue Smoke salsa, and loves the mountains and rivers...loves music, Mexican food and smokes Basic menthol cigarettes. Doesn't drink often, but will occasionally.

    May be anywhere.........He's been missing since Tuesday 7/28 a.m., very unusual for him...no one in his family has heard from him, nor has his fiancee...

    He is: age 49, whitish grey hair with goatee beard, wears glasses often, either driving a red Dodge Nitro or a blue pickup truck with Michigan plates.
    initials are G.S.

    If you see him, please tell him we have all talked ~ his fiancee, his sisters, and all love him, we need him, we are all worried about him and especially little ALEX can't wait for him to come home...

    PLEASE forward this widely...he is very loved
  • Jul 28 2009 9:57 AM


     



     







    Hello my sweet friend hope you have a wonderful and relaxing weekend take care and stay safe.
    Love & hugs

    ~Angel of the Sea~