EDS is grossly under-and/or mis-diagnosed: some 90% of those with EDS do not receive a proper diagnosis or treatment within their lifetime. We are working to change this statistic by raising awareness. ~~~~~~~~~~~~~~~
Ehlers-Danlos Memorial Tribute
Dedicated to those individuals who have
bravely fought a courageous battle with
EDS.
~~~~~~~~~~~~~
John Challis - Courage + Believe = LIFE
Please watch this one too.
http://www.youtube.com/watch?v=MrVBWdCnys4
John your truly inspiring and you will always be remembered
Another truly inspiring
testimony...
Nick "IS" the embodiment
of strength, courage, faith,
trust, and the power of
God's love.
He is the true essence
of a "Peaceful Warrior”
Remembering Mattie Stepanek a pure soul, a poet, a peacemaker, an angel in disguise who touched so many hearts in his short life.
Oakcrest H S
Mays Landing, NJ
Diplomato: 2000
Stato studente: Ex alunno
Diploma: In Progress
Major: Graduated William Daves School 1996 - Sadly he died - never got to attend Oakcrest
Materia secondaria: Would of graduated with the class of 2000
Associazioni:
My 14 year old son David lost his life because he was "NOT" diagnosed with Ehlers-Danlos Syndrome (EDS) Vascular Type.
Dave "NEVER" gave up! ~And~ NEITHER WILL I
A warrior does not give up what he LOVES,
he finds the LOVE in what he DOES...
A warrior's not about perfection, or victory, or invulnerability...he's about “ABSOLUTE VULNERABILITY”....
that's the only "TRUE COURAGE."
~“Way of the Peaceful Warrior”~ * * * * * * *
Awesome "NEW" Band
~"Dying to Live"~
Please check out my son-in-law,
Drew East's
very talented band,
"Dying to Live"
They just got signed to a record label and their album will hopefully be out by January 2010. If you like what you hear then please tell your family & friends about them...thank you for your support!
I know there are NO Words that truely can comfort you with the loss of Your Beloved Son,David but Please know You & Your Family are in my Thoughts & Prayers Today & Always!!!!! So sorry I have not been around much lately! There has been so much going on in my life.... But know you are NEVER far from my Heart even though we may never meet in person :) XoXo Browkenwing }i{
Dear Browkenwing, thank you so much for your continued thoughtfulness and always touching my heart with your beautiful, poignant gifts of the picture tributes that you make honoring my son. You can't possibly know what you have meant to me and how thankful I am that I get to call you my friend..Love ya!!!
Its very nice to hear from you... I am veryvery Bushed. we had everyone here today and I am checking onhere. Its my relaxation time..lol I miss you too. i cant wait to see Lynns tv thing... This should be really nice. I love you Cathy... You are always in my heart.... Love Grace
