~Promoting RSD Awareness
~Finding a cure for RSD
~Being a kid again
~Living a life without pain
Music
Our music player has songs that relate to our battle with rsd. Everyone is welcome to comment us on any songs you think relates and we'll add as many as we can.
Movies
Site Opperators:
Anabel 16, MI
Ashley 17, CA
Kara 17, FL
Nikki 17, NY
Nothing like being spread out?!♥
(We ♥ movies!)
Reading is good for you.
↑ that's a comic relief. RSD books:
-Positive Options for Reflex Sympathetic Dystrophy (RSD) by:Elena Juris, Edward Carden
-Living with RSDS by:Peter Moskowitz
-Lessons from the Washing Machine: Living with Reflex Sympathetic Dystrophy-Chronic Pain by:Ruth Miller
-Chronic Pain: Reflex Sympathetic Dystrophy Prevention and Management by:Hooshang Hooshmand, H. Hooshmand
-The Official Patient's Sourcebook on Reflex Sympathetic Dystrophy Syndrome: A Revised and Updated Directory for the Internet Age by:Icon Health Publications, Health Publica Icon Health Publications
Heroes
RSD sufferers and everyone who suppports them!♥
Also people with other disorders and diseases, we'd love to hear your stories too!♥
Hi, welcome to the Fight RSD myspace. This is a page where people with or without RSD can band together and help fight it. It doesn't matter if you don't know anyone with RSD, we'd still love to have you here.The four of us are just kids, kids with something horrible Reflex Sympathetic Dystrophy (RSD) otherwise known as Chronic Regional Pain Syndrome (CRPS). RSD/CRPS is a nasty nerve disorder that makes our lives complete chaos. It effects tons of people, yet no one knows about it. We don't blame you for not knowing but We aim to change that. We're out for awareness and we need your help to get it. We're all young, having started this myspace when we were all 15 but we believe in change. Try and learn about the disease, or if you have it feel free to use us as a support site, we're pretty social :D. It's our goal to make the "Invisible Disorder" not so invisible anymore.
Feel free to talk to us about anything, your life, fundraisers, events, questions, etc. etc. Comment them here or you can email us at fightrsd@yahoo.com or you can contact us separately(just let us know you're from here)!
-Anabel: on AIM at agilbert09 or by email at giggle_1333@yahoo.com
-Nikki: on AIM at DreamStartMayhem
-Kara: on AIM Karah141 or by email at Karah141@aol.com
www.cafepress.com/persevere_rsd
↑ This brings you to our store, by buying something you're giving a contribution to American RSD Hope
"A hero is an ordinary individual who finds the strength to perserve and endure in spite of overwhelming obstacles," Christopher Reeve. We'd like to meet our heroes, the people who overcome this disease and many others. We'd also like to meet each other and have a joyous party with all our new-found RSD friends.
hi and thanks for the friend's invite. I am so happy to share with everyone how I have beat the fibro monster after 11 yrs, ive had no symptoms return for over a year so i feel safe to say it is finally gone. It didnt happen over night, thats the hard part, slow but sure, and Im not trhough yet, I still have 30 lbs to go, and the neorological part of it is still undoing from my brain being use to functioning off chronic pain and sickness, now it is rewiring for the new me lol, whoohoo, almost 49 yrs old and set loose with a new attitde. Gonna ride for fibro all winter, wish i had a horse lol, but my bike is great, and im speading the word as much a i can. thank you for taking an interest in my story. im almost finished with my book about my fibro story. God bless you my new fibro friend!
love patti aka FibroXpress
Whoohoo, Jesus has shown me more then mercy, His Favor on my life is forever made me know Im loved! I give my thanks to Jesus healing, but thank God for my doctor who showed me what to do :)!
THEY SAY IT TAKES A MINUTE......
.......TO FIND A SPECIAL PERSON, .......
.....AN HOUR TO APPRECIATE THEM, ......
.........A DAY TO LOVE THEM, ........
..........AN ENTIRE LIFETIME.........
..............TO FORGET THEM.............
.......SEND THIS TO THE PEOPLE......
.............YOU'LL NEVER FORGET..............
.........IT'S A SHORT COMMENT..........
...........TO LET THEM KNOW.............
......THAT YOU'LL NEVER FORGET THEM......
...IF YOU DON'T SEND THIS TO ANYONE...
.......IT MEANS YOU'RE IN A HURRY.......
..........AND THAT YOU HAVE FORGOTTEN.........
...............YOUR FRIENDS
If you get a dozen, you're loved!!
HEY Honey!!! How are you doing? How have you been doing? We haven't talked in a while. I miss you much and I hope all is well. When you get a chance send me a message and we will catch up. God Bless I hope your having less pain. Love u much Sincerely, Alicia
I've been in remission for a while now. Or what they call semi-remission. But I believe I am slowly coming out.
I have a few questions regarding temperature changes in the affected areas. If anyone with experience in this area could message me I would greatly appreciate it.
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