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Hidradenitis Suppurativa Awareness (Ruth)
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"Hidradenitis Suppurativa - Often referred to as the Hidden Disease"
Female
41 years old
WISCONSIN
United States
Last Login:
6/30/2008
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Mood:
grateful
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View My:
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http://www.myspace.com/hidradenitis_suppurativa |
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Hidradenitis Suppurativa Awareness (Ruth)'s Interests
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| General | Among other things I volunteer my time to support research and awareness of the disease Hidradenitis Suppurativa (HS)
This is one of the projects that I am working on, and I am looking for volunteers to help create and maintain the group. If you are interested please let me know.
HS Resources Yahoo Discussion Board
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Hidradenitis Suppurativa Awareness (Ruth)'s Details
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| Status: | In a Relationship | | Here for: | Networking, Friends | | Orientation: | Straight | | Body type: | 0' 0" | | Zodiac Sign: | Aquarius | | Smoke / Drink: | Yes / Yes |
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Hidradenitis Suppurativa Awareness (Ruth) I think "Vanna from Montana" should be made into an "Action Figure / Super Hero Character".....LOL ;)
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Hidradenitis Suppurativa Awareness (Ruth)'s Latest Blog Entry
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The HS Education Day & Benefit were both a success.
(view more)
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What Can You Do For HS Awareness Month?
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Worthy of Reposting: Teach Me, and I Will Be Silent...
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What causes hidradenitis suppurativa?. Experimental Dermatology 2008.
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The HS Resolution Is Now A Bill! - H.RES.1037
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| [View All Blog Entries] |
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Hidradenitis Suppurativa Awareness (Ruth)'s Blurbs |
About me:
Hidradenitis Suppurativa (HS), also known as 'Acne Inversa', is a physically, psychologically, and socially disabling disease affecting inverse areas of the body (those places where there is skin-to-skin contact - armpits, groin, breasts, buttocks, etc.), and where apocrine glands and hair follicles are found. It is non-contagious and recurrent; typically manifesting as a progression from single boil-like, pus-filled abscesses, or hard sebaceous lumps, to painful, deep-seated, often inflamed clusters of lesions with chronic seepage (suppuration --- hence the name) involving significant scarring.
HS typically goes undiagnosed for years because patients are ashamed to speak with anyone. When they do see a doctor, the disease is frequently misdiagnosed. Only relatively few physicians are able to recognize it and even when they do, suggested treatments are often ineffective, temporary and sometimes even harmful. There is no known cure nor any consistently effective treatment; what works for one person may not work for another. In advanced, chronic cases, surgery is often the choice, but recurrences of HS are not uncommon.
HS has been categorized as a "Rare" disease. But it is not rare, it is only rarely diagnosed properly.
Please, stop hiding and come join us here. Let's show the world how many of us exist. YOU ARE NOT ALONE.
For more information regarding HS see:
HS Foundation
HS USA
NOTE: If you are requesting to be added as a friend please also send me an email identifying/explaining yourself, why you wish to be added, if you have HS, etc.
ALSO - If you send me an email and you are not in my friend network. PLEASE make sure that your security settings are not set to:
A)Only people in your friend network can send you an email.
AND
B)People need to know your email address or your last name in order to send you a friend request.
If I haven't replied to you, it's probably because your myspace settings make it impossible for me to do so.
Thanks!
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Who I'd like to meet:
Someone who can cure this disease or at least come up with a viable treatment option.
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| Hidradenitis Suppurativa Awareness (Ruth)'s Friend Space (Randomized) |
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Hidradenitis Suppurativa Awareness (Ruth) has 212 friends.
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