Hidradenitis Suppurativa Awareness (Ruth)

About me:

Hidradenitis Suppurativa (HS), also known as 'Acne Inversa', is a physically, psychologically, and socially disabling disease affecting inverse areas of the body (those places where there is skin-to-skin contact - armpits, groin, breasts, buttocks, etc.), and where apocrine glands and hair follicles are found. It is non-contagious and recurrent; typically manifesting as a progression from single boil-like, pus-filled abscesses, or hard sebaceous lumps, to painful, deep-seated, often inflamed clusters of lesions with chronic seepage (suppuration --- hence the name) involving significant scarring.

HS typically goes undiagnosed for years because patients are ashamed to speak with anyone. When they do see a doctor, the disease is frequently misdiagnosed. Only relatively few physicians are able to recognize it and even when they do, suggested treatments are often ineffective, temporary and sometimes even harmful. There is no known cure nor any consistently effective treatment; what works for one person may not work for another. In advanced, chronic cases, surgery is often the choice, but recurrences of HS are not uncommon.

HS has been categorized as a "Rare" disease. But it is not rare, it is only rarely diagnosed properly.

Please, stop hiding and come join us here. Let's show the world how many of us exist. YOU ARE NOT ALONE.

For more information regarding HS see:
The Hidradenitis Suppurativa Foundation (HSF)

HS USA
France - AFRH - Maladie de Verneuil
Germany - Akne Inversa
Netherlands - HPV


You can find most of the Yahoo HS Discussion Groups Here

And you'll find the largest group Here

NOTE: If you are requesting to be added as a friend please also send me an email identifying/explaining yourself, why you wish to be added, if you have HS, etc.

SECOND NOTE: Please do not post "Apps"/Applications/etc. I reserve the right to edit or delete anything posted that I do not feel is appropriate for this "Awareness" profile. And please do not take it personally if I delete or edit a comment that you have posted. Too many "Apps" and HTML pictures slow down the loading of profiles. I want everyone to be able to view this profile. Even if they are still using dial up. :) I hope you all can understand.

Thanks!