BELOW IS AN INTERVIEW THAT WAS DONE AROUND 2003 FOR THE HUMAN RACE WE PARTICIPATE IN EACH YEAR TO RAISE MONEY FOR THE HERMANSKY PUDLAK SYNDROME NETWORK. AS YOU WATCH PLEASE UNDERSTAND THAT THE STATS GIVEN FOR CASES IN THE USA CHANGE YEARLY. INCIDENCES IN THE PUERTO RICAN POPULATION ARE 1 IN 1800 AND IT IS BELIEVED THAT 1 IN 21 OF PUERTO RICAN DESCENT CARRY THE GENE. ENJOY THE INTERVIEW
Let's see.....I believe that life itself is quite interesting, and with that being said....I enjoy walks in the park, ham radio, although I had to sell my rig awhile back. sob, sob. Doing fundraising for the Hermansky-Pudlak Syndrome Network, meeting new people, especially from different cultures.
BELOW IS A BRIEF INTERVIEW, WHERE I WAS NAMED VOLUNTEER OF THE WEEK. AS YOU WATCH I GOT THE NUMBER OF YEARS WRONG, AS I WAS DIAGNOSED IN 2002, WHICH IN 2007 WOULD HAVE BEEN 5 YEARS FROM THE TIME OF THE INTERVIEW. WE SAY 4 YEARS AGO. I WAS VERY NERVOUS AND EXCITED AT THE SAME TIME, SO SIT BACK AND ENJOY!!! AGAIN THE NUMBER OF CASES ARE CONSTANTLY CHANGING SO KEEP THAT IN MIND AS YOU WATCH.
Music
I like most all music except opera. If you like opera, sorry if that offends you, but a girl has to draw the line somewhere.
BELOW IS A VIDEO ABOUT HERMANSKY PUDLAK SYNDROME. IF YOU WOULD BE SO KIND AS TO SIGN UP FOR THE HERMANSKY PUDLAK SYNDROME NETWORK AT WWW.GOODSEARCH.COM IT WOULD BE GREATLY APPRECIATED AS WE WOULD LIKE TO FIND A CURE OR BETTER TREATMENTS FOR THIS DISEASE!!
WATCH THE VIDEO BELOW, AND YOU NEVER KNOW WHAT YOU MIGHT LEARN!!
THANKS
KAREN TILLMAN (HPS SUFFERER)
Movies
My all time favorite movie is Somewhere In Time. A great romantic sci fi flick!!!
Television
Don't really see much, but my 3 favorite shows are Grey's Anatomy, House, and Desperate Housewives!!!
Books
To many to list
Heroes
God is my hero as He became my savior at the young age of 8, and has carried me through all the rough spots. He is the only one who can give us the peace to accept things we cannot change, and the strength to endure the things we must.
Karen's HPS Korner's Details
Status:
Married
Here for:
Networking, Friends
Orientation:
Straight
Body type:
5' 3" / Slim / Slender
Ethnicity:
White / Caucasian
Religion:
Christian - other
Zodiac Sign:
Aries
Children:
Proud parent
Education:
Some college
Karen's HPS Korner's Schools
Rockingham County High
Wentworth,North Carolina
Graduated: 1982
Student status: Alumni
Degree: High School Diploma
Clubs: Spanish Club, Chorus, Health Careers, WRCH Radio Club, Treasurer for Social Science Society, FHA,
1978 to 1982
Karen's HPS Korner is in your extended network view more
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WE ARE SADDENED THAT MICHAEL AND HIS FAMILY WILL BE IN GUAM SERVING IN THE NAVY FOR THE NEXT 3 YEARS. IT WILL SURELY SEEM LIKE AN ETERNITY!! WE WILL BE AWAITING YOUR RETURN WITH OPEN ARMS!!! GOODBYE AND GOD BLESS YOU ALL AS WE HAVE MEMORIES TO HOLD US UNTIL YOU RETURN. Be sure to click on pic to see captions underneath.
I was born in a small town hospital located in Reidsville, NC. Needless to say when I was born, everyone knew there was something different about me. Oh my goodness, what do we have here.....An albino!!!! The doctors of coarse told my parents not to worry. "Just keep her out of the sun, and help her with visual aids as she gets older" So, my parents took me home, and tried to follow doctors orders. Later on I went to public school with everybody else. My years at school were tough, becasue other kids picked on me especially since I not only looked different from them, but I had to read everything while holding it up to my nose (I was legally blind). Needless to say the friends I did make were very special to me and still are to this day. During my 3rd year of school I became very sick with what was known then as Crohn's Disease. As a matter of fact, I was in and out of hospitals quite a bit. My poor parents were even accused of abusing me becasue of all the bruises I would have when I would come into the emergency room. I even missed my entire 8th grade year of school and was homeschooled. I had my colon removed at age 13. You would think with all the symptoms I was having someone would have picked up on the real culprit. Not only was I albino, but at age 38 I learned I had a disease called Hermansky-Pudlak Syndrome. Which albinism can be a symptom of. My hope is that I can share some of my knowledge about HPS, and some of the ups and downs of everyday life through the eyes of someone with Hermansky-Pudlak Syndrome.
Who I'd like to meet: LEGALLY BLIND WITH ALBINISM, CANDICE AND CRYSTAL WERE DIAGNOSED WITH HERMASNKY PUDLAK SYNDROME AT THE AGE OF 13.
ALTHOUGH THEY ONLY USE A LITTLE OVER 60% OF THEIR LUNGS, THEY HAVE THE MOST BEAUTIFUL VOICES, AND A WEBSITE CALLED WWW.ANGELSINVOICE.COM CHECK OUT THEIR NEW CD, AND BUY A COPY. YOU WON'T BE DISAPPOINTED!!
THE SONG "COLORS OF THE WIND" HAS BECOME THE THEME SONG FOR THE HPS NETWORK.
I know, animals are such charactors. Ok pace yourself for this, lol. We have two Jack Russell Terriers, four old cats, a crazy quaker parrot (who is about 20 years old and out of her mind), and two beautiful red slider turtles. LOL!!! I know it sounds crazy, but that's my family. I don't have any children so they make up for that. LOL As soon as I get my digital camera I will be posting pictures like crazy.
Karen, I just wrote a check for your cause and it will be in the mailbox tonight! I support your cause 100% and will do what I can to help. I feel that I've been selfish with my spending lately and this is yet another eye-opener for me. I donate monthly to St. Jude Children's Research Hospital as well and was not aware of an outlet for donations for HPS until now.
Your story touches my heart and I've grown close to some friends of yours whom I won't forget. Thank you for sharing your story Karen. You're in my prayers.
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