About me: This is my daugher Lana, she was diagnosed with a rare blood disorder called HLH in May 2007. This is my Blog of what happens to her and our family as she goes through her treatment which started in May - chemotherapy, imunotherapy and a bone marrow transplant.
October: Lana is in Gteat Ormond Street Hospital having her bone marrow transplant.
December 18th Lana was discharged and is now at home
Other HLH kids:
www.elyseyu.com
www.savjonah.com
www.hlhconnections.org
Hi ya V...Just dropping by to say hello and see how things were going? How's lil' Lana?? We have been off-line for a while as we have moved house and were waiting for our internet connection to be set up.
Hopefully we can chat soon...I really appreciated your last message...would be great to speak to another mum thats been through BMT, as it may well be an option for us...we still don't know if Jamie's sister is a match for him or not yet...fingers crossed eh?!
Hi, How are you & little Lana? We were in Addenbrookes last week..only for the day though thankfully. I agree, it would be nice to meet, being as we are so local to one another! U guys take care. You are in our thoughts....and we're so pleased that Lana is doing so well...Go Lana!!! xx
It was so good to see you at the weekend and catch up with how you are all doing. Thanks for showing us GOSH. It really hit home how lucky we are to have healthy children. I'm so glad to se photo's of Lana smiling again. We are all hoping that it continues! Take care xxx
You have such an amazing daughter! In every picture she has a beautiful smile on her face, despite what she is going through. She's an inspiration. Love to all the family - we're thinking of you x
