Learning more about Osteopetrosis! please go to the following link to learn and understand more!Chewing on my hands right now!Listening to Delilah sing to me! Letting my Mommy Love ME!I am lucky to be part of such a big family
Müzik
I LOVE my big sister Delilah to sing to me. She sings- Jesus loves me, He's got the whole word in His hands,I'm a little tea pot, Lilly Belle do your feet smell,and I love her cheerleading too!I Love the music from The Nine Months Movie Soundtrack from 1992. Mom keeps it on her phone for me.
Filmler
Not big on Movies. The doctors say that I am blind. (We'll see what Jesus says)Even if I am; My mommy will walk through FIRE to make sure I have the best tools available to make it through this world.Ya know the govenor of NY is blind! Y'all think Hillary gave it a good go! Look out U.S.
Televizyon
I am blind so I do not see the TV but I sure like to listen to the teletubbies! I love Mike Mclelehan @ CBS NEWS . I have no choice but to listen to HANNAH MONTANA 6 times a day. My sisters love it!
Kitaplar
Any Books that my mommy reads to me!All of the fuzzy animal books that they give me here at the hospital.And one day The book my mommy will write about me!
Kahramanları
MY BIG SISTER DELILAH WHO DONATED HER BONE MARROW TO ME! SHE'S SO BRAVE AND SHE'S THE REASON I AM ALIVE TODAY! Congressman Adderolt and his assistant Sheila who made it possible for me to get to U of M and of course.My Big Brother and Sister for being so brave during all of this time away from Mommy!Pilots for Christ who flew me here to get my transplant! All of my nurses on the 7th floor at Children's Hospital in AL.Dr. Orchard for working hard with my mommy to get me the proper care I deserve!
Lilly Belle Transplant Page | Detaylar
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Lilly Belle Transplant Page Bone Marrow and Blood Drive at the Memphis Motor Speed Way in my Honor Oct. 2&3! Please be a part of a life saving event! 22 Eyl 2009 tarihinde devamı
Lilly Belle Transplant Page | En Son Blog Yazısı
[Bu Bloga Abone Ol]
My Story - By my Mommy / Feel free to copy,print & share it!
(devamı)
Hakkımda: SUPPORT ALL STEM CELL RESEARCH! It is the key to me gaining eye sight in the future! I am 5 mons old, and I have a twin sister, ROSE!That's her!!! WE ARE RED HEADED! SO LOOK OUT! She's a bit bigger than me huh? but She's so cute! As for me; I have Malignant Infantile OsteoPETROSIS. It is a rare and fatal bone disease, which prevents the bones from remodeling and it depletes the bone marrow canal-which creates and operates my blood production and immune system. I get blood and platelet transfussions regularly to keep me alive. The transplant is complicated because it's hard to do a bone marrow transplant when there is virtually no bone marrow canal. The doctors also say my disease has caused me to go blind. It breaks Mommy's heart to hear that but I will suprise her with all that I can offer this world, even if I am blind! I will be alive and I will do great things! I will get the rare transplant in Minneapolis, Minnesota in order for any chance to survive. My big sister Delilah is my match for the transplant. We are in Minnesota now, where I have already undergone brain surgery and many other procedures to prepare for the transplant. I have 4 siblings. I have a twin sister Rose, a 4 year old sister Delilah, and 9year old twin brother and sister / Seathe and Hannah. My mommy is here taking care of me; as we had to leave my brother and sisters behind in AL. for the next 4 months or so, in hopes for my survival.My daddy (Tim) works for Steve Johnson Racing. He travels in the NHRA circuit so he is gone a lot. We miss him. My mommy has had to close her small daycare center and now we have one income. It's a tough time but I know of all the families in the world, God gave me the one who will make it work out! Even when it takes an act OF CONGRESS!(My Mom's a tough gal) But, You can help our family and me, Lilly Belle during this unexpected, life changing time by donating to my Transplant Fund at lillybellemiracle.com through paypal or Call Deena with Tradition Bank at 647-3000 for more information.
Kimle tanışmak isterim: The staff at Congressman Adderholts office! They ROCKED the state of Alabama and Minnesota in order to get me here! All of my doctors - again in 10 years when I am up walking, running, playing, learning and laughing, I will say thank you for saving my life! Dr. Orchard is doing some awsome treatment and research for Osteopetrosis!
YOU CAN TYPE IN YOUR PRAYER FOR ME AT:lillybellemiracle.com
Lilly Belle Transplant Page | Arkadaşlar (En İyi 19)
On this holiday of Thanksgiving,I am truly honored to say..you have made my life special,with your true friendship and loyalty. I have been blessed each day from all of you. Your kindness will forever be held in my heart. May you know the joys of friendship like I have through all of you...God Bless you richly,in friendship love
Remember that a little love goes a long way. Remember that a lot... goes forever. Remember that friendship is a wise investment. Life's treasures are people... together. Realize that it's never too late. Do ordinary things in an extraordinary way. Have health and hope and happiness. Take the time to wish upon a star. And don't ever forget... for even a day... How very special you are
(¯..♥..¯)..*.•*¨)♥ ¸...•*¨)..*.¸.*....*.¸.*..)..*.•*¨)♥ ¸.•*¨)..* A Little Bit of Friendship¸.•..¸.•*♥¨)¸.•*¨) Goes A Long Way (¸.•..♥ (¸.•.. .•.. ¸¸.•¨¯..• (¯..♥..¯) ..*.¸.. I’m Lucky.•..¸.• :)¸•¨¯..♥¸.•*¨) To Have a Friend Like YOU~~)..*.¸.*.. ¸.•¸.•*¨) ¸.•*¨)..*.♥.*.. ¸.•¸.•*¨) ♥¸.•*¨)..*.¸.*.. ¸.*•¨¯..Love n Hugs.~~..*.•*¨♥.* Love you sweetness
Praying the Lord will tenderly guide and strengthen you, and bless you with all the things He knows you need. I hope you have a blessed day. ~Love N Hugs~
Our Friends are like angels who brighten our days. In all kinds of wonderful, Magical ways. Their thoughtfulness comes, As a gift from above.Our friends are And we feel we re surrounded, By warm, caring love. Like upside-down rainbows, Their smiles bring the sun. And they fill ho-hum moments, With laughter and fun. Friends are like angels, Without any wings. Blessing our lives, With the most precious things. (¨..•.•..¨) ...•.¸(¨..•.•..¨) .... ♥•.¸.•..♥ (¨..•.•..¨) ....(¨..•.•..¨). ..•.¸.•..♥ ... ♥..•.¸.•..♥*..¨) .................¸.•..¸.•*..¨) ¸.•*¨)
Helo Lilly Bellle, I have not forgot you sweetie..i pray that you are doing well and playing with your twin Sister!!! Hugs 
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