About me:
My name is Logan George Edson, I am 3 years old and suffer from a rare muscular disorder called Ullrich Congenital Muscular Dystrophy (UCMD).
Suffering from UCMD causes muscle weakness, which means i will never be able to walk.
UCMD also causes Muscle tightness and double jointedness, this means i have to have many sessions of physiotherapy and regular check ups at the hospital to ensure my joints are not seizing up.
I also suffer from respiratory problems, which results in frequent chest infections,i have had pneumonia three times, twice of which were life threatening and i was almost lost.
I'm a happy little monster who loves life, my sense of humour is wicked and i'm a very friendly little boy.
