Congenital Heart Defect Awareness
Being a Mommy
Helping other families who have had to deal with or are about to learn to deal with the unique hearts their children have, and the trials they have to go through..
Music
We LOVE Laurie Berkner.. Through her last 2 open hearts and heart cathetizations, along with many cardiologist appointments, Laurie Berkner came with us.. She sang on Aubreys little dvd player and helped her through the pain.. We owe a lot to a woman who doesn't know anything about us..
Movies
Aubrey LOVES Bear in the Big Blue House, Dora, Blues Clues, Fraggle Rock, Elmo, Sesame Street, but above all else she loves Laurie Berkner.. I think she thinks she is her..
Television
Noggin or WQLN World World, Curious George, Blues Clues, Dora, Go Diego Go, Jacks Big Music Show
Books
You are my I love you
Heroes
My Daughter
Dr. Norwood, Dr. Gandhi, Dr. Morell and YOUR Child
My name is Angelina, I am making this site to help spread awareness for Congential Heart Defects.. My Princess Aubrey Nevaeh was born January 16th 2004 with the congenital heart defect called, Hypoplastic Left Heart Syndrome.. She has had 3 major open heart surgeries, the Norwood, Glenn and Fontan.. She has also had 3 heart catheterizations, 2 angioplasties due to coarctation of her aorta and after her Fontan due to Chyllous Effusion she was rushed back down to Childrens Hospital of Pennsylvania to have tubes placed in her lungs to drain extra fluid.. Recently (September 2007) she was at the cardiologist and he gave her a great bill of health.. So great in fact that we don't have to go back until the summer of 2008..
She is a Miracle, a true beauty of all things.. She is the strongest woman I will ever know and has overcome every obsticle that has ever been placed in her path.. Where often times we need strength in numbers, she is strength in just one.. Her tiny little body has been through more than any little body should go through, but still she continues to thrive, to smile, to love and to help others with her story.. My daughter being the strong little woman she is, is why I've decided to create this page.. To share her story, for others to share theirs, and to get more support for children with all kinds of congenital heart defect..
Who I'd like to meet: I've meet her, the strongest woman in the world, Aubrey Nevaeh..
I'd also love to hug her surgeons again.. Dr, Sanjiv Gandhi who is now at the St. Louis Childrens Hospital, he saved her life starting at 3 days old then passed the reins to Dr. Morell who did her Fontan in August of 2006.. I'd love to show them in person the little life they helped save..
Any child who has overcome the tremendous hurdles of a CHD..
My name is Angelina, I am making this site to help spread awareness for Congential Heart Defects.. My Princess Aubrey Nevaeh was born January 16th 2004 with the congenital heart defect called, Hypoplastic Left Heart Syndrome.. She has had 3 major open heart surgeries, the Norwood, Glenn and Fontan.. She has also had 3 heart catheterizations, 2 angioplasties due to coarctation of her aorta and after her Fontan due to Chyllous Effusion she was rushed back down to Childrens Hospital of Pennsylvania to have tubes placed in her lungs to drain extra fluid.. Recently (September 2007) she was at the cardiologist and he gave her a great bill of health.. So great in fact that we don't have to go back until the summer of 2008..
She is a Miracle, a true beauty of all things.. She is the strongest woman I will ever know and has overcome every obsticle that has ever been placed in her path.. Where often times we need strength in numbers, she is strength in just one.. Her tiny little body has been through more than any little body should go through, but still she continues to thrive, to smile, to love and to help others with her story.. My daughter being the strong little woman she is, is why I've decided to create this page.. To share her story, for others to share theirs, and to get more support for children with all kinds of congenital heart defect..
