I love to see my Godfather Mike, Charlie, Jonny Two Bags, Craig and the rest of the S.D. boys do there thing.
Johnny Cash, Cadillac Tramps, Ramones, The Blasters, Alley Boys, The Palladins, AC/DC, Joan Jett, Mercy Killers, Pink Spiders, Old Crow Medicine Show, Dwight Yoakam, Rancid, Hank III, Green Day, Bo Diddley, Old School Jams- Temptations, Earth Wind and Fire, Otis Redding, Marvin Gaye, Al Green......my Dad insists on Old School
Movies
Grease,
Grease II, Another State of Mind, Rock and Roll High School,Tura Satana flicks
The Wanderers, Moulin Rouge, Nightmare Before X-Mas, Chicago, Beauty and the Beast, Toy Story, Little Mermaid, Aladin, Princess Diaries,
Television
Disney Channel, MTV II
The Simpsons, Family Guy,
King of the Hill, South Park, UFC Unleashed, Wrestling, Food Network,
Books
The Bible.
What ever my mom and dad read to me. I can't read.
Heroes
My Mommy, she is my voice because i can not speak.
My Daddy, he is my superman and my legs, He carries me where ever i need to go because i can't walk.
My brothers Danny Boy, Bobby, and Justice for always making me laugh.
My Grandpa Tony, R.I.P. You were always there for me no matter what. I love and miss you.
My name is Scarlett and i have Rett syndrome.
I love to go to see bands play, hanging out with my brothers,I like parties, hawaii, guys that fight, Car shows, Motorcycles, I love to eat good food, going to disneyland, taking long drives & Hanging out at my Uncle Alex Gambino's shop.I'm also a proud member of the ROAD LORDS cc.
My bad ass GodFathers .....................................
Alex Gambino and Mike Ness
I've spent alot of time in the hospital, once for almost 3 straight months ! I flatlined twice but god knew how much my parents needed me so he kept me here to take care of them.
I probebly party more than anyone here....not by choice, i'm just on alot of anti- seizure medication.
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What is Rett syndrome?
Rett syndrome is a childhood neurodevelopmental disorder characterized by normal early development followed by loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, gait abnormalities, seizures, and mental retardation. It affects females almost exclusively.
The course of Rett syndrome, including the age of onset and the severity of symptoms, varies from child to child. Before the symptoms begin, however, the child appears to grow and develop normally. Then, gradually, mental and physical symptoms appear. Hypotonia (loss of muscle tone) is usually the first symptom. As the syndrome progresses, the child loses purposeful use of her hands and the ability to speak. Other early symptoms may include problems crawling or walking and diminished eye contact. The loss of functional use of the hands is followed by compulsive hand movements such as wringing and washing. The onset of this period of regression is sometimes sudden.
Another symptom, apraxia — the inability to perform motor functions — is perhaps the most severely disabling feature of Rett syndrome, interfering with every body movement, including eye gaze and speech.
Individuals with Rett syndrome often exhibit autistic-like behaviors in the early stages. Other symptoms may include toe walking; sleep problems; wide-based gait; teeth grinding and difficulty chewing; slowed growth; seizures; cognitive disabilities; and breathing difficulties while awake such as hyperventilation, apnea (breath holding), and air swallowing.
The following website will give you more information about Rett Syndrome: http://www.ninds.nih.gov/disorders/rett/detail_rett.htm
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Hi Scarlett! I just got home from the airport, and I am bummed! I miss you, justice and yer momma and dad sooooooooooooooooooooo bad! I love you sooooooo very much! Another great vacation with my family! XOXOXOXO
hi scarlett, just sendin' sum love your way since i logged onto this site after quite a while...dunno if ya remember me from a previous time ya were here, but i missed ya this time around despite my best intentions to be there...my piece of %&*#$! ride decided to take a dump on me as i was leaving for maxwell's to see ya and there wasn't anything i could do...hope you're doing well and to see ya along with your folks, the next time ya'll visit this area...i'm sure your uncle jj will let me know ahead of time...meanwhile stay well and take care hun - jerzy... ;)))
Hi There Sweetheart I miss you & Love you very much. I wish I lived closer to you so I could visit you more often. Please do me a favor & take care of your Brother & your Mom & Dad.
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