Myositis World

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Hey, hows everything going? How's the "DM World"? lol:P

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jackie i have inclusion body myositis. i understand about misdiagnoed and hard to find info. i see a rheumatologist. im in a small town. duke hosp. does not except my insurance so that dampers things. im fighting with soc sec. etc. if i can help others let me know. we can all work together to help each other.

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Hey Myositis World,
I left you a gift. Click and pick it up.

Loss of Jennifer Wells, you can find out more on her myspace page.

This is the post from one of her friends on myspace, it is so sad when we lose yet another person to this dreaded disease.

Sending our love and hope for a cure,

Jennifer and Sydney Kavanaugh



Jennifer Wells Memorial Service 11/15/2008


I logged into Jenn's my space so this would reach the over 200 friends she has on my space-we wanted to reach everyone that knew Jenn

It is of a great loss to us all as we say "good bye" to our Jennifer. As short as 27 years are, we all know Jennifer lived 5x lifetimes! Her passion and devotion was to Camp Craig Allen! Jennifer was the "right brain" of Camp Craig Allen. As a founding Executive Board member, it was Jennifer's passion and dedication everyday in everything she did to get Camp Craig Allen built.

Jennifer has touched every single person she has met, please join us to honor and respect the life of hers.
The info will be as followed for her service, so please read and repost this blog/email in other groups Jennifer was a part of too, we can only hope we can share the info to all that she knew and touched.

Saturday, Nov 15th, 2008- Memorial Service 10am in the Church Sanctuary of the Northway Christian Church off HWY114 in Dallas. Directly proceeding this (11: 30am) we will go to the Fellowship Hall (connected to the same Church building) and have a Celebration of Life Service until late afternoon. This will include lots of food, music,a slide show in an atmosphere of celebration and reflection of fun times with our Jenn.(Please bring your stories to share of a special time with Jenn as there will be an open mic for such)

Northway Christian Church
7202 W Northwest Hwy
Dallas, TX 75225
214-361-9341

A slide show is being compiled this week by Bill Crews to include 27 years of Jenn' s extraordinary life, so if you have some very special pictures you want to share,email him with those directl

Thank you:) I am in yet another full blown flare brought on by Chad's sudden death and trying to keep pushing my body thru basic training. I have become dependent on my parents to take care of Sofia and myself. I'm pushing the AP full dose and hopefully will start making a turn here soon.

How have you been? Did you get to Denver for the Conference?

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