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ROCK CF Foundation's Interests
General
Rock N Roll, Curing Cystic Fibrosis, NOT SMOKING!
Music
Hellen, South Normal, Shipwreck Union, The Muggs, The Hard Lessons, Vigilante Sidekicks, Wolfbait, Overloaded, Hotness, Grande Nationals, The Paybacks, Dirty Americans, Bulldog, The Vamps, Gore Gore Girls, Whitey Morgan, Novada, Sponge, Broadzilla, Stolen Liberty, Alex Winston and all the hard working Detroit Rock N Roll bands! www.songsforsixtyfiveroses.com, www.ahouseformykids.com
Books
Alex: Life of a Child, A Little Love Story
Heroes
Everyone living with Cystic Fibrosis that holds thier heads up high and is willing to fight!
About me: Founded and led by Emily Schaller, the Rock CF Foundation is dedicated to increasing the quality of life for people with Cystic Fibrosis. With the help of a core group of volunteers, the Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.
For those of you who don't know, I (EMILY) am 26 years old and I have Cystic Fibrosis(CF). I was diagnosed with CF at 18 months old and am still rockin today! I started The Rock CF Foundation to raise awareness and funds for CF because I feel that not enough people know what Cystic Fibrosis is and how much is being done each year to treat us afflicted with the disease. I really believe that using the arts and entertainment is a great way to reach and teach people about CF. Each year I spend about 8 weeks or more in the hospital undergoing treatments and each day I spend hours on home treatments along with swallowing 30 or more pills. This is all very normal for the 30,000 people living in the U.S. with CF. Life expectancy right now is about 37 years old and this increases each year because of funding from people like you.
***On August 2nd Emily and three of her friends are going to be riding their bikes from Detroit to Chicago via Michigan Avenue. Emily and her friend Kevin rode the 282 miles last summer and are at it again this summer. Joining them are two of Emily's good friends Kevin and Marylou.
YOU can join in on a portion of the ride too! On August 2nd a 20 mile group ride will leave Detroit and head to Dearborn and back. Please visit WWW.CITYTOCITYRIDE.ORG for more info on how to register or how to donate to help us Rock Cystic Fibrosis!!***
Who I'd like to meet: Patients with CF, families of patients and friends of those living with cystic fibrosis. Also we are looking to meet anyone who wants to help with benefits and spreading the word about this genetic killer of children and young adults.
thanks for the add. its cool that yall do this. im in the army, and my son was born march 20, 2008, and hes been diagnosed with CF. good to know people are doin stuff to find a cure.
Check out some of our upcoming shows at the Royal Oak Music Theatre! Comedian Mike Birbiglia takes the stage June 26th, tickets are $32 and $35, on sale now! Also on July 1st, don't miss Less Than Jake and Goldfinger. Tickets for Less Than Jake are $21 in advance, $25 day of show and are on sale now. We hope to see you at these great events live at the Royal Oak Music Theatre!
Rock and tip a few back this Thursday!!! See the part in the flyer where it says FREEEEEEE ENTRACE, DRINK SPECIALS, FREE APPETIZERS!!! Hope we can see you there!
Thanks for the add. Support the Michigan local music scene or promote yourself with a free signup at localmusiclife. com. Be sure to check out our Resources section and don't miss our non-profit advertisement program.
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To help sell tickets for the Bon Giovi / Bryan Adams Experience gig, aimed at raising the profile of Cystic Fibrosis and funds for the Cystic Fibrosis Trust, can you include me in your list of ‘Top Friends’ for a while,
I just wanted to tell you about the t-shirts I am selling to support my lung transplant. Visit www. cafepress. com/lungtransplant to see the shirts I have custom made. Thanks Melissa
I am soo looking forward to sharing my music with you! If you would like to help me please tell your friends about my music or post my song on your page! Every little bit helps me so much!
You Rock!
God Bless and looking forward to keeping in touch!
