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Our family was introduced to Reflex Sympathetic Dystrophy, more commonly known as Complex Regional Pain Syndrome, over five years ago when our wife and mother acquired RSDS/CRPS from a cumulative repetitive stress injury.

This subject is important not only to us; but to;everyone who is affected by it. We must spread awareness of RSDS/CRPS, so that it can be recognized by people in the medical community, insurance companies, and government agencies. They need to learn to diagnose RSDS/CRPS and expedite treatment so that those people who are still in their first 3 to 6 months can have a better chance of remission and those of us who have missed that window of opportunity can get treatment to prevent the RSDS/CRPS from spreading.

Inspired by our 5th grade daughter, our family started a website called RSDUPWORD. Please take the opportunity to visit, you can read her report, learn more about this chronic nerve pain syndrome, and see how the rest of our family contributes to the site.

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We would like to meet anyone afflicted or affected by RSDS/CRPS. Also, any individual that is interested in learning about this chronic nerve pain syndrome and/or wants to help to spread RSDS/CRPS awareness.

As time passes we are sure that the personal list of people we wish to meet will grow, but as we begin our journey we hope to meet and thank the indivuals who supported our efforts: Jim Broatch, Executive Director of RSDSA; Karen and Lynne O. from American RSDHope; and Cynthia Toussaint, the dancer that started Forgrace.org.