Anything outside!! I love the fresh air and colors. I love gardening, hiking, fishing, walking, exercising, like I said anything outdoors. I love my job working with kids...so I love kids. I like just being home with my family and hanging out in the backyard with a frozen drink!
Music
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These beautiful pictures were taken by Casey at JCPenny, StoneCrest Mall. Thanks Casey for your patience and your talent!!
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Movies
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Television
Our friend, Ori, is raising money for NF inc. by selling calendars, mugs, shirts, etc. The best part is Kate's picture is on them :) There are two pages sites to look at:www.cafepress.com/nf_curewww.cafepress.com/nf_cure2www.cafepress.com/nf_cure3
Click below on the "Children's Tumor Foundation" to see an educational video about children with Neurofibromatosis and Carter's Team. It was a real tear jerker for me so have your tissues ready. We will be walking/jogging/running a marathon in the next couple of months so we will keep you all posted. My next hero is Drew, a local guy, who has a rare form of NF. Here is his story and it is quite amazing. He lives not too far from us and his mother is a teacher in Gwinnett County. Please view this inspiring video at the link below!!
NF has been classified into three distinct types; NF1, NF2 and Schwannomatosis. They are caused by different genes, located on different chromosomes. NF1 is not a rare disorder, it is the most common neurological disorder caused by a single gene. NF1 is the more common form of NF, occurring in 1:3,000 births throughout the world. NF2 is a rarer type, occurring in 1:25,000 people worldwide. While today there is no consensus, studies indicate that Schwannomatosis occurs in 1:40,000 people, similar to NF2. The Neurofibromatoses are genetically-determined disorders which affect more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington's Disease and Tay Sachs combined. All forms of NF are autosomal dominant genetic disorders which can be inherited from a parent who has NF or may be the result of a new or "spontaneous mutation" (change) in the sperm or egg cell. Each child of an affected parent has a 50% chance of inheriting the gene and developing NF. The type of NF inherited by the child is always the same as that of the affected parent, although the severity of the manifestations may differ from person to person within a family. NF is worldwide in distribution and affects both sexes equally and has no particular racial, geographic or ethnic distribution. Therefore, NF can appear in any family. Although most cases of NF1 are mild to moderate, NF1 can lead to disfigurement; blindness; skeletal abnormalities; dermal, brain and spinal tumors; loss of limbs; malignancies; and learning disabilities. NF1 also has a connection to developmental problems, especially learning disabilities, which are five times more common in the NF1 population than in the general population. The distinguishing feature of NF2 is tumors that grow on the eighth cranial nerve in both ears, commonly causing deafness and severe balance problems. NF2 brings on increased risk of other types of nervous system tumors as well. NF2 can also cause severe vision problems, including cataracts, retinal abnormalities and orbital tumors.
About me: I am really enjoying life right now and want to be better each day.....make some sort of difference. Eric and I would like to dedicate this website to help educate people about Neurofibromatosis (NF). For those of you that don't know, Kate our 4 year old daughter, has NF1. We found out when she was two years old because she has 6 or more cafe-au-lait birth marks. She is in perfect health right now but things can change at any time. NF is a genetic disorder that causes tumors to grow in different areas of the body. She can get a few tumors over her life time or thousands....and they can be anywhere on or in her body. If you are interested in learning more go to CLICK HERE or you can ask me....I am always more than happy to answer any questions or talk about it. You can also check out some of my friends pages below....they have some inspiring stories to be told!!In March 2007 my mom and I walked the GA ING half marathon to raise money for NF research. In September 2007 Eric, Alyssa, Christopher, Audrey and I did the half marathon in VA beach. This past year in March my mom, Marty, James, Jeanine, Heather, Eric and I did the GA ING half Marathon again. So far we have raised over $10,000 for NF research and we hope to keep making that number grow. This next marathon coming up in March 2009 will be special for us. Kate is going to be the NF Hero. You can read more at the Children's Tumor Foundation newsletter. We are really excited!! href:"http//:archive.constantcontact.com/fs017/1101879085422/archive/1102261898299.html/"Click here to check out our fundraising website Click Here. If you would like to join our team please contact me. We are looking to increase our team annually and you don't have to be a runner...you can walk too. If you want to feel that you are a part of something "big" please join us, the NF Marathon Team is an amazing bunch of people. All marathon donations to Children's Tumor Foundation will go 100 percent to research. Please help us to make a difference in our child's life as well as others!!I have come to a point in my life of true clarity. I don't have time for any of the typical negative daily BS. I think I realize all the important things in life and that family and friends are what matter. I want to improve each day and continue to make goals for myself. I want to make my daughter proud and be a good role model. I want to live each day better than the last.....and all those other cliches!!
hello. just a quick comment to tell you I have been thinking about you. I hope all is well and that you are going to have a good week! Love your friend, Karen
Hey there! just spreading the word about the abyss show tomorrow night at sweetwater in duluth. http://www.myspace.com/sweetwaterlive we would love to see you out there at the show!!
No, I hate facebook. I have to make a conscious effort to like it since everyone's very active over there. Ahhh, that awesome Florida vacation you take every year. When do you go? When we move upstate I dread thinking that lakes will be "beaches". That's a riot! lol
Hey!! Yes, we're still moving... When we get there lol :) Probably the end of the summer, maybe after Christmas, who knows?
I know, I can't believe the school year is almost over! One more month here. I love when the kids are off :) Are you near the beach? Life's a beach here :)
Dear Lord, it's such a hectic day With little time to stop and pray For life's been anything but calm Since You called on me to be a mom Running errands, matching socks Building dreams with building blocks Cooking, cleaning, and finding shoes And other stuff that children lose Fitting lids on bottled bugs Wiping tears and giving hugs A stack of last weeks mail to read So where's the quiet time I need? Yet when I steal a minute, Lord Just at the sink or ironing board To ask the blessings of Your grace I see then, in my small one's face That you have blessed me All the while And I stop to kiss That precious smile
You are a REAL MySpace friend who's friendship I value greatly. I wish I could leave a message to you and everyone else on my list of MySpace friends on a regular basis but it is impossible. Fortunately you all seem to understand and you have stayed with me and stood by my cause through thick and thin. Thank you sincerely for your friendship.
Hi - I am picking 13 people who have touched my life and who I think would want to receive this. Please send it back to me (You'll see why).
In case you are not aware, Saint Theresa is known as the Saint of the Little Ways, meaning she believed in doing the little things in life well and with great love.
She is represented by roses. May everyone who receives this message be blessed.
Theresa's Prayer cannot be deleted.
REMEMBER to make a wish before you read the prayer. That's all you have to do. There is nothing attached. Just share this with people and see what happens on the fourth day.
Sorry you have to forward the message, but try not to break this, please.
Prayer is one of the best free gifts we receive. Read the prayer below.
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Saint Theresa's Prayer
May today there be peace within.
May you trust God that you are exactly where you are meant to be.
May you not forget the infinite possibilities that are born of faith.
May you use those gifts that you have received, and pass on the love that has been given to you.
May you be confident knowing you are a child of God. Let this presence settle into your bones, and allow your soul the freedom to sing, dance, praise and love...
It is there for each and every one of us.
Now, send this to 13 people within the next 5 minutes. And remember to send this back. I count as 1.
This comment was sent by your friend via the Rockstars app. To block this app and all communications from it, click Here.
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ICETVUTUBE wants you to join their band in Rockstars, a game where you can form bands with your friends and play gigs, battle rival bands, and become famous on MySpace!
It's even cheaper than that in Texas, but there's no mountains and really no spectacular sites, but it's nice. Most of my aunt and Uncle's friends are NY'ers or north easterners too :) They all flock together. I'd love to come visit! Now that we have a camper maybe we can. That would be fun!! I'd love to see all "you's guys" lol
Texas was great!! I had so much fun! Yes, I went to visit my family there :) I can see what compelled you to move down to Georgia. Just looking in Houston you see how well people can live for so much less money than NY requires. Houses is one example. A house down there that sells for $109,000 would sell here for almost half a million, and the salaries there are the same as here. They are raising our taxes again drastically in NY within the next few weeks. Glenn doesn't want to move to Texas though. He says you get what you pay for and Texas is flat. I said we've been flatlanders our whole life, now it's a problem? What do you think Long Island is. Then he says, yeah but we're moving upstate and that's not flat. lol :)
