Save Babies Through Screening Foundation promotes its mission by the following objectives:
Improve awareness of disorders detectable through newborn screening
Improve awareness of the newborn screening blood test
Facilitate communication among screening programs, support groups, and families
Improve newborn screening guidelines and regulations
Improve clinical identification of affected neonates
Enhance resources for newborn screening testing; short-term follow-up care programs; and long-term follow-up programs for treatment development and research
Promote national consistency among screening programs
Benefits of Comprehensive Newborn Screening
Early detection of disorders and conditions detectable through comprehensive newborn screening (CNBS) is vital. Although the newborn screening test detects disorders that cannot be cured, early invention and treatment is beneficial in most cases.
Prevention
Affected babies are at risk of mental retardation, physical disabilities and even death if they are not diagnosed and treated early. Comprehensive newborn screening gives you the opportunity to protect your baby from the preventable complications of undiagnosed problems. If your baby is affected, newborn screening can play a key role in allowing you child to live a normal life.
Children who are born with these disorders and go unscreened sometimes spend several months, even years, suffering through numerous medical tests to find out what is wrong with them. Some even have extensive hospital stays in intensive care because no one knows what is wrong with them and thus aren't treating them properly. This is because a clinical diagnosis is difficult if these children aren't properly screened.
Peace of Mind
And if your child's test is normal, comprehensive newborn screening can give you peace of mind.
Get More Information
Learn more about newborn screening by visiting our frequently asked questions and supplemental newborn screening pages on our site at www.savebabies.org.
Heroes
Any child affected by a condition, and their families for their strength. Also - the many advocates, and supporters of expanded newborn screening.
Save Babies's Details
Status:
Single
Zodiac Sign:
Virgo
Save Babies's Companies
The Save Babies Through Screening Foundation Malvern, PA US
Save Babies is wishing you a safe and happy summer! Posted at 5:41 PM Jul 16 view more
Who I'd like to meet: Newborn Babies - whose lives we can save with newborn screening, and expanded newborn screening! Spread the word by making us your next MySpace friend!
Tera, you are braver and stronger than I ever hope I never have to be. Hang in there, it will get better. I'm very sorry for your losses. Its such devastatingly bad news to hear of this. I'm so sad. :-(
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Come join my cause: Support Krabbe Disease! You will be able to recruit friends, raise money, and add a profile badge to show your support!
Hey Guys, Will you support me in my effort to spread awareness? No one should have to live with this terrible disorder. Manny of you watched what it did to me and I don't want to let another person go through what I’ve gone though. So educate yourselves tell you family and friends that with early detection (like Newborn Screening) that you can stop this disorder in its tracks. So be part of the solution and tell your friends and family to support our Newborn Screening efforts in the fight against Krabbe!
Thanks for the add! What your foundation is doing is great. I'm glad what you are doing to help spread the word and by having you as a myspace friend, I hope I can help some more.
Hi! My name is Kristin De Lisa. I think that what you guys are doing with your foundation is awesome! Last March my good friends baby was diagnosed with Krabbe disease. Her name is Zoe Alexis Gavriilidis. Since then we have just watch helplessly as poor Zoe's life is taken away from her by this horrible disease. This is probably the second time you will have heard from me, as I recently sent you guys an email about Zoe's Fundraiser. Thank you from the bottom of my heart for all you guys do!!
Please read more about Zoe at ..www. caringbridge. org/visit/zoealexis..
I work for the Metabolism/Biochemical Genetics department in Indianapolis, IN. Diagnosing and treating children just like yours with love & the parents with respect. Thanks for a great website. Good luck with your endeavor to educate the world about Newborn Screening!
Thanks so much for adding me .. Your story is so amazing we do need to get the word out more about having new born screeing I have been telling so many friends and family about this I wish I had arms to hug all of you much love to all...
