About me:
Sleepydust (Dot Net) was founded in 2003, and has since grown to become one of the largest resources for ME/CFS/PVFS and Fibromyalgia sufferers.
The main Sleepydust web site offers a wide range of free information for sufferers, their friends, family and carers. Not only can you learn about the symptoms and effects that such a devastating illness has on the sufferer and their family, but you can also check out groundbreaking ME/CFS & Fibromyalgia-related news, research, studies and more, as and when they become available.
Sleepydust's mission is to raise awareness about ME/CFS/PVFS and Fibromyalgia, and to support, motivate and inspire the
people who live with these illnesses.
Our long term aims:
To increase awareness about these illnesses
To create information products and material which both:
help ME/CFS & FMS sufferers to manage their illness and improve their quality of life; and
help ME/CFS & FMS sufferers to live inspired, motivated and fulfilled lives.
Sleepydust's awareness video:
Add Sleepydust's awareness video to your MySpace/Web site/Blog:
Please help us raise the profile of ME/CFS by displaying our free video on your MySpace (or other blog or web site, for that matter!)
It couldn't be easier and it only takes a few seconds...
All you have to do is add a piece of code to your MySpace page, or your website or blog template and voila! You have an embedded, educational ME/CFS video that will help educate others about the condition. And best of all... it's free!
So what are you waiting for?
Start spreading the word right now! Let's spread the word, raise the profile of ME/CFS, and get the WORLD to notice! :-)
Who I'd like to meet:
Any ME/CFS/PVFS or Fibromyalgia sufferer, or friends, family and carers of anyone whose life has been affected by either of these devastating illnesses.
Hi guys, just noticed something that I thought I'd share if anybody's interested - I get the bookpeople. com catalogues because there's no commitment to buying anything unlike every other catalogue I've had, and I saw there's a box on the orderform where you get discount if you have a disability or pension number!
Hi there, Just thought I would drop you a quick line. Over the last couple of days I have been browsing the Sleepydust website and have just downloaded the latest edition of the e-zine. I love them both, lots of interesting stuff. You are completely right when you say it's a lonely illness. I've been reading some of the experiences of the other sufferers and it really helps when you know you are not alone. Keep up the good work.
I have been suffering with fibromyalgia for the last 3 yrs. Its wonderful that you have a site like this. Have a great weekend and many thanks for the add.
Hello Sleepydust! I am so glad you have added me as a friend especially this evening. I was at hospital earlier as my GP had sent me to a neurologist due to constant twitching. He gave me a long endless lecture on how ME and CFS didn't exist and if it did that it would certainly not affect my muscles or nervous system. I just nodded and smiled ...heard it all before 100s of times! Glad you are there! Love and Peace Veronique
Hello...I am Melissa from Georgia. I was diagnosed with fibromyalgia 10 tears ago but up until about a year ago I was relatively pain free. When I did hurt I could take tylenol or for rel bad pain I would take a darvocet. About a year ago though I had to start taking motrin 8oo mg's three times a day. And I can not skip a day. If I happen to run out before pay day I feel like I have been run over by a truck. I HURT all over. But now it seems to be getting worse. I can hardly walk.My legs plumb ACHE. My right elbow where it bends hurts so bad I can hardly use it for anything. I work for a company that delivers magazines to various locations and I have to walk a lot and use my right arm to put the magazines out. It doesn't take a genius to figure out that my job is aggravating my fibro but what am I supposed to do? I am trained in "vendor" work. Thats it. I am 38 years old and I don't want to be crippled. I can not live on what the goverment projects they will pay me and my hubby is already recieving SSI and medicaid. I am so scared. Can anyone else relate? Is this only going to get worse and worse?
Hi guys, don't know if anybody is interested but I recently started acupuncture for my migraines and the doctor says he can help with the CFS symptoms too - I plan to post updates on my blog with how it's going, and would be interested to hear from anybody else who's tried it.
