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Stop Kids Strokes
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Stop Kids Strokes. Together we can make a difference.
Female
39 years old
COLCHESTER, Connecticut
United States
Last Login: 7/4/2009
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confident
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Stop Kids Strokes's Details
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| Status: | Married | | Here for: | Friends | | Orientation: | Straight | | Hometown: | Colchester | | Body type: | 5' 3" / Some extra baggage | | Ethnicity: | White / Caucasian | | Zodiac Sign: | Taurus | | Children: | Proud parent | | Education: | High school | | Occupation: | C.N.A |
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Stop Kids Strokes Infants have strokes. Kids have strokes. Even unborn babies have strokes. Help spread the word!
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Stop Kids Strokes's Latest Blog Entry
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2nd Annual Stop Kids Strokes Walk 4 Research
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Katie & I were on the Better Connecticut Show talking about Infant & Childhood Stroke!
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My child's hand A poem for my daughter.
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My baby had a stroke....this is our story.
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Stop Kids Strokes's Blurbs |
About me:
My name is Annette Brennan.
I am the mother of 2 wonderful little girls. The oldest is 5 the youngest turned 2 in February.
I have been with my husband for 18 years now. Sometimes it feels more like 80 though.
I decided on my screen name Lucky Mama because of my younger daughter Katie.
When my younger daughter Katie was 7 months old we found out she had a stroke. The doctors believe she had it while i was still carrying her. They have not been able to find a cause.
I imagine you are probably saying to yourself "I didn't know babies could even have strokes" neither did we.
That is why i set up this site.
I am hoping to help raise awareness about this very important issue.
Anyone can have a stroke! Any age,Any race!
Infant have strokes,
Kids have strokes,
even unborn babies have strokes.
Since I found out about Katie's stroke, I have found a support group online for parents just like me, and since I joined the group, I have found that many of the parents don't know why their children had a stroke either, and most had never heard of Infant & Childhood Stroke.
That is why we need more research into the causes and best treatments for infant & childhood stroke.
Most of the money spent on stroke research is spent on adults.
While that research may also help children, we need research that is directed at child survivors directly.
Child survivors have many issues that are the same as adults, but also many more that are totally different.
If a adult has a stroke when they are 70 the causes will be very different than what may have caused my unborn baby to have a stroke.
The treatments will also need to be different.
In a 70 year old woman you want her to recover as much as possible, and survive as long as possible, but even in the best of circumstances that is maybe 20-25 years.
In my daughter she is looking at dealing with this for the rest of her life. I hope that will be 80 or 90 years. When you look at it in that way, it is a very big difference.
2/3 of the children that survive a stroke will have neurological deficits or seizures.
While we have been blessed and Katie is not having any seizures at this time. we will have to worry about one striking her for the rest of her life.
Stroke survivors can start having seizures at any age, not having them as a infant is no guarantee that you will not have them later in life.
Katie's stroke caused her to have Spastic Cerebral Palsy Hemiparisis and Microcephaly.
What that means in non-medical terms is that Katie has weakness in her right side, trouble controlling her hand, arm, leg and foot and a smaller than average head size.
We have been lucky so far and it looks like Katie is only mildly affected by the stroke, she is now learning to walk and talk.
That is not the case with many other children. Some can't walk or talk or even eat without choking.
By now you are most likely wondering why in the world I chose the name Lucky Mama after all that.
I chose the name because i know how truly lucky we are that Katie is alive and doing so well.
I have 2 beautiful girls and i have found a way that i can make a difference.
I would like to pass along some great sights that you can get more information on Infant and Childhood Stroke.
CHASA-Children's Hemiplegia and Stroke Assoc. At www.CHASA.org -
They have tons of great info. on childhood stroke and you can even make a donation to childhood stroke research. 100% of the donation goes to the research.
HemiKids support group at www.HemiKids.org -This is a support group for parents and family's dealing with these issues.
Childhood Stroke Awareness at www.ChildhoodStrokeAwareness.org - Great info. on how you can make a difference.
Kids have Strokes at www.KidsHaveStrokes.org -Lots of good info.
The pediatric Stroke Network at www.pediatricstrokenetwork.com More info.
The Morris Foundation at www.mindsthatmatter.org -you can make a donation here too.
If I forgot anybody you can email me at-
stopkidsstrokes@att.net
The 1st Sat. in May is National Childhood Stroke Awareness Day.
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Who I'd like to meet:
Other people who want to find a way to Stop Kids Strokes and give our little survivors the best life possible.
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