Music production, jewelry making, shoes, oil painting, pretending I have a green thumb, obsessively organizing closets and other things that have no true impact on quality of life.
http://www.foundart.org/
Music
Elvis Costello, The Clash, Pixies, Blur, Grant Hart, Stone Roses, Huffamoose, Etta James, Social Distorion, Supertramp, AC/DC, Jeff Buckley, Erasure, Black Grape, Madness, Spiritualized, Maria Muldaur, Pulp, Neil Finn, Boston, ZZ Top, Simply Red, Beastie Boys, Disco Inferiority Complex, Chicago, Radiohead, Billie Holiday, Free Design, The Smiths, Montrose, Dead Milkmen, Weezer, Manic Street Preachers, Ella Fitzgerald, X, Placebo, Styx, George Thourougood, Super Furry Animals, Lou Reed, Adam Ant, Bjork, Journey, David Bowie, Breeders, Sex Pistols
Movies
Give My Regards To Broad Street, Troll, Dark Crystal, Purple Rain and many other movies I should feel shame for watching.
Television
Murder, She Wrote, Mr. Bean, Monk, Big Love, Little Britain, Creature Comforts [truth be told, I generally don't have the patience to sit through an entire show]
Books
I'm actually reading one now! Books are good! You should try one!
Heroes
The person who finds a cure for genetic based auto-immune disorders. Elvis Costello (I want to have lots of affairs and lots of albums). Ohhh, I kid, EC would be musical heroe. People who have patience and/or substances that make them appear so.
Tara is Super Lupus!'s Details
Status:
Married
Here for:
Networking, Friends
Hometown:
Santa Maria
Body type:
5' 8"
Zodiac Sign:
Gemini
Smoke / Drink:
No / No
Children:
I don't want kids
Education:
Some college
Occupation:
Bath Goddess
Tara is Super Lupus!'s Schools
Santa Maria High
Santa Maria, CA
Graduated: 1996
Student status: Alumni
Degree: High School Diploma
1992 to 1996
Tara is Super Lupus!'s Companies
Bath and Baubles Santa Maria, CA US owner/ operator Total indulgence
June 2007 to current
Tara is Super Lupus! in the hospital for, it seems, forever! Posted at 1:38 AM Sep 21, 2008 view more
I grew up on the central coast of California. We just moved down the state to "the valley". Yeppers I traded Santa Barbara county for 110degrees of valley fun! I'll always be a California girl. Too far from the 101 and I get itchy. haha I am a big dork and it's fine to call me so. But It's gotten me this far and I think I'll stick with it.
I have Systemic Lupus Erythematosis. SLE is an autoimmune disorder in which my system attacks itself as if it were a foriegn infection. Every case is different, mine has attacked my Central Nervous System (CNS), all joints, kidneys, vascular system, lungs and heart. We can't predict where it will attack, for how long or what damage will be permanent. It caused my Pulmonary Arterial Hypertension. A historically terminal disease. It feels sort of like walking with a plastic bag over your head. You just can't oxygenate. But both of these diseases can't be spread. They also both have new promising treatments.
You might notice my accesories in pictures. I am on oxygen 24hours/day. I have an IV running at all times. It's sort of a disaster, really. It's my disaster though and I'm very proud of where I've been with my journey.
So, my plans have changed. I had been looking for something to keep me productive and occupied. I dabbled in descriptive writing. Now I have my own business. I make bath products and costume jewelry. I enjoy being my own boss, setting my own pace and indulging in many test baths. It’s not what I expected… but I love it anyway. You should visit my site sometime after my suppliers have shipped me raw materials to make my stuffs! I should also get stuff up on Etsy.com... when I'm mot so lazy.
Who I'd like to meet: Persons with an open mind to free exchange of information, thoughts, ideas and dreams. People with pulmonary issues, especially PAH! People effected by Lupus. Last but not least, I'd like to meet those who'd like to meet me.
thinking of you a lot lately... i catch myself daydreaming whole email conversations back and forth with you, especially after i leave a doctors office, or sometimes when i argue with some ignorant jerk who thinks they know everything... i wonder what you would say to make me laugh or feel better.. and usually that comforts me because we always thought along the same lines anyway... you have made such an impact on so many lives, and are still in all of our hearts... <3
I miss you so much, Tara. Your spirit and your light keep me going when things get tough. Your strength and your humor continue to be an inspiration to me. Because of you, I will never stop fighting to make our voices heard, and trying to make lupus a thing of the past.
Not a day goes by that I don't visit this site and say hello to you, my Tara. How appropriate your name is. You have been my "Tower of Strength" and I miss you even as I know you are really still here in our hearts. What testaments to your presence are all the notes from everyone who loves you and continues to feel you in their lives. It is difficult to believe that it has been a year since you left your body to take up residence in each of our memories. I still wish the phone would ring and I'd wake up froma bad dream to hear your voice. But, I'd rather miss you than to have you suffer again. I loved you then. I love you now. I will always love you, my daughter.
Cannot believe it has been a year today. I know your family & Steve are missing you so much. You were so dear to many! Going to make today a good day by bringing your memory to someone who does not know you but needs to know you and hear your story. I miss you and think of you so much my friend!
The crazy thing is i helped you move here and gave you a lot of insight on the cities you were looking into but then once you got here i never really got a chance to meet you before you passed.. that saddens me
Tara, not a day goes by that I don't think of you..I miss talking to you..right now I am having my own lung issues.. I was just in the hospital for double pneumonia.. and a massive kidney infection.. I am tired..but you know how it goes..I miss ya..
Hey Tara. Joe from the group lost his battle. This whole lupus thing is really scaring me. I am scared of leaving my kids behind. I could not see anyone else taking care of them. You know what an ass my ex is. I miss you and the way you made it all better. Loves, V
Hello my Sweet Tara, I think about you every single day. I write to you in my journal in my Letters to God. Now I have my section on Letters to Tara. We did it! We raised over $4000 for one of your most favorite lupus organizations, ALR. The local newspaper even interviewed me about lupus and about living with and I ended babbling about YOU almost the whole time and how much I miss you. They ended printing it in all of the newspapers in the Chicagoland area! I raised over $500 more just from that article that was published on Wednesday to Friday.
I could feel you with me the whole time, Sweet Pea. And the walk was yesterday, and we made it through... We did it. I would have never been able to pull this off without you with everything I am going through right now. But it was amazing. I wrote on our sign "keeping Tara's memory alive" under The Spare Spoons. Chicago ended raising over $110,000. It's a beautiful thing. We'll find a cure, love. I miss you and love you always. I hope I made you proud. <3 P.S. Here is the article if anyone is interested in reading it. http://www.suburbanchicagonews.com/heraldnews/lifestyles/1613981,4_5_JO10_LUPUS_S1-090610.article
Life is too short to wake up with regrets. So love the people who treat you right. Forget about the one's who don't. Believe everything happens for a reason. If you get a second chance, grab it with both hands. If it changes your life, let it. Nobody said life would be easy, they just promised it would be worth it.
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yours was way to short, but definetly worth it, cause you touched so many people!
just thought about you... big hugs to you and also big hugs to your family. thanks to them, this site is still up and letz us visit.
A woman has strengths that amaze me.. She can handle trouble and carry heavy burdens.. She holds happiness,Love and opinions.. She smiles when she feels like screaming.. She sings when she feels like crying.. Cries when she's happy,and laughs when she's afraid.. Her love is unconditional.. There's only one thing wrong with her, and that is that sometimes she forgets what she's worth.. Pass this onto every beautiful woman you know, I just did
You cross my mind often. Today I wanted to visit and look at photos. I smile that you touch so many people with your wonderful attitude and humor about life. I cry out of sadness and my own selfishness that you left so early. I know you were tired. I miss you! Steve you have helped everyone by keeping Tara's site up. Thank you so much.
Tara, I know you are in a better place, but that doesn't mean I have to stop missing you. I really miss our chats via messages. You are really a great person to talk with. One who's time was cut way too short. I miss you always. Steve, thank you for keeping Tara's site alive, as our memories of her will always live on. R.I.P. you are always thought of and I share your story with many!
This is the first time I came back to your page. I have missed you so much and not talking to you has been the worst. Just thought I would see if I was in the same boat.
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