If you are interested in learning more or joining the club, please visit our website.
Membership is FREE and there is no requirement to own a costume to join. We have no age restriction on membership and our forums are actively moderated with this in mind.
The club website is bursting with costuming tips, fun topics, discussion forums and arcade games , as well as photo galleries from previous events attended by the Group.
Charity
We are a non profit making group and all members attend events at their own expense. Every penny of your donation has gone to the registered charity this event is run in aid of.
The running costs of the group are met by the kind donations of our members.
Events
If you would like further information on how the 99th Imperial Garrison can help you raise funds for your chosen charity, or would like us to attend an event please email: events@the99thimperial.com
Finn
is a beautiful 3 year old who has a very rare condition called
Primordial Dwarfism. It is very important that Finn gets over to
America for essential treatments and consultation and as you can
imagine this can get rather expensive.
As
a result we are holding a series of auctions where 100% of the proceeds
will be donated to this cause. Most of the auctions will have a
collector / memorabilia theme usually focused around Star Wars but
there are plenty of other items up for grabs. Many, if not
all of the
items have been donated by the wonderful Members of the 99th
Imperial
Garrison without which these auctions would not be possible. We are
also collecting for Finn at various events across the UK so keep an eye
out for us in costume.
Finn
was born on 4th february 2005, seven weeks early weighing 2lb 4oz, we
could fit her in the palm of our hand during the first few weeks. At 9
weeks she was able to come out of hospital weighing 3lb 5oz she also
had a tube which passed through her nose into her stomach to
help her eat.
After 19 months Finn had a gastrostomy tube put directly into her
stomach which she still has to help supliment her calorie intake as she
only eats very small amount of food.
When Finn was 2 years old she had numerous tests to find the reason for
her slow growth, at this time we also began to research various growth
disorders withe the help from other family members we came across a
website primordial dwarfism.com. In the links section of the
site was a link to medical journal which contained research
about the disorder in this there was a picture of a little girl who was
practically identical to Finn.
The name of this disorder is Majewski Osteodysplastic Primordial
Dwarfism (MOPD) Types II, it is a very rare condition of which there
are around 60 people in the world and only 4 diagnosed cases in the uk.
There are many issues associated with mopd type 2 including brain
anurisms, scoliosis of the spine, loose hip joints and the main one
being very short stature the average size
of a fully grown person being 3ft tall. Many adults suffer from similar
conditions but because of Finns size some of these issues could be
potentially fatal.
Finns diagnosis followed shortly afterward from a specilist in canada.
It was a huge relief to have a solid diagnosis as we can now understand
finns needs for the future. We are now able to have brain scans every
year to redue the risks of anurisms and hip and spine x rays keep an
eye on her joints to treat any discomfort that she may have.
Finn is now a bright and independent 3 years of age, she loves peppa
pig the colour pink, having stories read to her, dressing up and
despite her size has developed a big personality and character.
Finn has achieved good comunication skills and is at the same level as
children her age.
She has begun to face issues related to her size which is 2ft 1 inch
and 14lb in weight.
Some of the problems that finn has started to come across are getting
up stairs as her legs are not long enough for the steps and she needs
help to come back down, she needs the light switches and door handles
lowered to enable her to reach them and a big issue that we have
found is the size of the toilet and sink finn needs smaller versions of
both of these.
We are raising money to help finn go to america in june to meet other
people with primordial dwarfism (type 2). The little people
convention is a yearly event where little people from all over the
world with all types of dwarfism get together for one week and learn
about each others lives Finn has met 2 other children with mopd type 2
who live in the uk and we would love her to be able to go to america in
june to meet everyone else at the convention.
There are 4 specialists in mopd type 2 all of which of which attend the
convention every year to speak with families and research more into the
condition. Any information that we can gain about this rare
condition will benifit finns life in the future.
This year the specilists have found protiens and hormones that are
missing in people with mopd type. At the convention this year they are
hoping to get as many people as possible together to help the research
further and we would love finn to be able to take part
Check out the Clone Wars Exhibit that revealed an insight not present in the trailers and made me leave my doubts at the door by clicking on the image below:
hey my friend saw your profi3le and thinrks you look holt! she is new to myspyace but wants to chat with you on msan mes4senger her name on there is emily82bath@hotmail.com
Online Now!
