Holly-The Angelic Anarchist
"Laugh a little, love a lot."

Female
100 years old
Wiltshire, Southwest
United Kingdom



Last Login: 3/24/2008
Mood: giggly Mood Image
View My: Pics | Videos

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 MySpace URL: 
  http://www.myspace.com/theangelicanarchist  

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    Holly-The Angelic Anarchist's Interests
GeneralCheese, Dairylea, Babybel, Trouble, water, exploring, swimming, wrestling and generally escaping.
MusicAnything as long as its loud.
MoviesForrest Gump. Scum. Finding Nemo.
TelevisionAnything as long as it watched from 3 inches away from the screen. The more explosive the better.
BooksMmmmmmm tasty.
HeroesMum, Dad, Charlie, Barkley. And my really olds. Maggie.

     Holly-The Angelic Anarchist's Details
Status:Married
Here for:Friends
Zodiac Sign:Capricorn



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   Holly-The Angelic Anarchist's Blurbs
About me:


Behind my infectious giggle, loving nature and fondness for trouble lies a long story.

Hi, I'm Holly (aka The Angelic Anarchist thanks to my computer nerd father). I'm now 5, and I have Angelman Syndrome, a genetic disorder. In simple terms, part of one of my chromosomes is missing.

This means that I have severe special needs, I cannot talk or walk at the moment, and a perception of the world that would defy Freud. I also have drug controlled epilepsy.

However, despite this, I am a happy little girl, with a love for life, causing trouble and general mischief. I like making new friends in my own special way.

I will require lifelong care- but then so will my parents !

In 2004, the olds set up my website The Angelic Anarchist to spread a positive view of dealing with an Angelman Syndrome diagnosis.

Its great- because in cyberspace, I get to air my thoughts in a way that I cannot in real life. And never will be able to. Whats more is that other angels are taking my lead, and training their parents through the website too !

The name comes from the practical turmoil that somebody with my boundless energy and limited attention span can bring to a household. And those with Angelman Syndrome are known affectionately as 'angels'. It seems to have struck a chord the world over !

To date, I have managed nearly 10,000 hits (the bruises don't show, honest!) and lots of gang members around the globe (Which my Dad tells me is further than Sainsburys).

I now live full time with my Mum, attend a special school in Wiltshire, and get to spend every other weekend (at least) with my Dad. Both of them refuse to let my royalty stand in the way of us all living life to the full. With a smile.

For more details of Angelman Syndrome, please visit the ASSERT website of which my Dad is a trustee.

Who I'd like to meet:
Fellow cheese lovers, gang members and trouble makers. ! And anyone else who wishes to become an angelic anarchist.


   Holly-The Angelic Anarchist's Friend Space (Top 17)
Holly-The Angelic Anarchist has 17 friends.
 ASSERT 


 Noddy 


 Lesley 


 Beckie 


 Zackary 


 Justin 


 Angelman Syndrome Awareness:Brenda & Jonathan 


 Terry 


 Rene' 


 Hobo Jones & The Junkyard Dogs 


 Horatio 


 Harli 


 Disco's Girl 


 Plankton 


 Angel Ravynn 


 Levellers 


 3 Daft Monkeys 





Holly-The Angelic Anarchist's Friends Comments
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Angel Ravynn





Jun 11 2008 10:04 AM


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May 24 2008 10:26 PM

I just gave you a sticker for your profile.

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Angel Ravynn





Apr 18 2008 6:40 PM

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Mar 14 2008 7:36 PM

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Feb 14 2008 5:18 PM


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Jan 26 2008 8:33 AM


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Jan 18 2008 7:07 PM

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Jan 18 2008 7:05 PM

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Jan 18 2008 11:57 AM

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Have A Happy Birthday Sweet Girl! love from Alex and his family in Ohio, the US!
Rene'





Jan 18 2008 10:17 AM

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Holly we hope you have the best Birthday ever !!
Not Your Average Soccermom!





Dec 31 2007 7:31 PM

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Happy New Year! hugs from Tracey and the kids
Zackary





Dec 31 2007 2:10 PM


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Angel Ravynn





Dec 31 2007 12:15 PM


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Harli





Dec 30 2007 9:19 AM

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Dec 22 2007 12:19 PM

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Dec 21 2007 2:49 PM


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Nov 7 2007 6:36 PM

Hi Holly, sending you big hugs, lots of giggles, and boatloads of mischievous ideas to make the grown ups crazy! love Alex (and his family)
Harli





Oct 31 2007 7:50 AM

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Holly-The Angelic Anarchist





Oct 28 2007 7:47 AM

Trouble is the new black ! Ha Ha Ha. Lost my first tooth recently, but I'm still waiting foe th Babybel fairy !
Beckie





Oct 17 2007 6:51 AM

Hey you, how you doing??
I am really well. Now crawling and climbing and generally into everything - mum is going greyer by the minute LOL LOL ;-) Started nursery last week and I am having so much fun, its nice to be out and about and having fun with my friends at school. Mum also like the 3 hours off, bet she misses me though!
Its my birthday next Monday so I am meeting with some Angel friends on Saturday - usual place Hop Skip and Jump. I know its a little way for you, but if you are free we will be there from about 1.30 until 4 causing havoc.

Lots of love
Hannah xxx
Beckie





Sep 26 2007 8:37 AM

Hi Holly

Hey bud, how you doing? Apparently I am starting nursery in a few weeks time, whats that all about? Went for a visit and it was fab - this huge room to crawl around and no one telling me to stop ;-)
Will let you know how it goes.

Lots of Angel hugs

Hannah xxxx
Hobo Jones & The Junkyard Dogs





Sep 21 2007 1:31 AM

Hi Holly, Good to meet you at The Ragged Hedge Fair. Hope you enjoyed it! See you at a festival next year hopefully.

Lesley





Sep 14 2007 12:57 AM

Plopkins what are you doing on here ? Now I know what you and your father get up too... don't let him go too wild now... XXX Love you Angel XXX
Beckie





Sep 13 2007 10:31 AM

Hey Holly

Your buddy Hannah is sending you LOADS of angel hugs and saying hi. xxxx
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