me, my birth mother who made the toughest decision a woman should make by giving me up in hopes of giving me a better life than what she could offer at the time, and two of my black pugs whom I rescued from horrible puppymill situations.
I have MCTD which stands for Mixed Connective Tissue Disease. This rare disease is an autoimmune disease. I also have lupus, MS, scleroderma, Raynaud's, Sjogren's, vasculitis,... this list goes on, but it is only what I have notwho I am. I have been "sick" since I was 2 years old so this is the only life I know. I do not know what it is like to be healthy; to have a life without doctors and hospitals and pills. For me, this is all normal. I have good days and bad days. I have days when I have to take all 8 of my allotted pain pills for the day and then there are days when I can get by with only half of that. Now that is a good day! I celebrate each day. I am thankful for everyday that I am here to witness the miracle of nature that surrounds us everywhere we go and everything we do. Don't sweat the small stuff. It's not worth it. Life's too short. My mantra you ask?.....
Do you believe in Magic?
I live in southwestern Wisconsin on about 40 acres of land with 5 dogs and 10 cats and 1 husband. I am from Chicago and will always be a Chicagoan, especially with sports. No matter where I live, Chicago will always be my home.
Being disabled, I don't work outside my home and I live in a very rural area which all limits my opportunities to socialize and meet new people. I use the internet as my social lifeline. I met both my ex-boyfriend and my husband online. I am always interested in meeting new people in search of a great new friend.
Who I'd like to meet: Evel Dick (Donato), Dani Donato, Taylor Hicks, Harrison Ford, my birth father and any unknown relatives... and a good friend with a good heart
Hey Tinkerbelle (pug lover) How are you and Bad WX doing? Not to mention all the animals LOL Hope you are all doing well. Miss you guys, Kathy www. LupusMCTD. com ..
Disability comes in many shapes and sizes. It can be very obvious, or not obvious at all. However the person living with the disease deals with it on a daily basis. no end to the suffering they encounter. But, maybe by educating the public it will remove a bit of the suffering.
Happy 5th wedding anniversary. That is a great accomplishment in this day and age. I wish you many more happy years together. God Bless you both. Debby
Hey Tinkerbelle, Happy Belated Birthday!!! Pretty pic of the cake, I bet it was awesome !
I'll be redoing the videos on You Tube so if you & H want new pics on them, please send them to me at LupusWebsite@aol.com I'd like to work on the new video this coming weekend.
NEW!!! We are on You Tube http://www.youtube.com/user/LupusMCTD
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