Tuberous Sclerosis Alliance
"Tuberous Sclerosis Alliance"

Male
46 years old
SILVER SPRING, Maryland
United States



Last Login:7/19/2008
View My: Pics | Videos

   Contacting Tuberous Sclerosis Alliance

 MySpace URL: 
  http://www.myspace.com/tsalliance  

     Tuberous Sclerosis Alliance's Details
Status:Single
Zodiac Sign:Gemini



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About me:
The Tuberous Sclerosis Alliance is the only national organization in the United States dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. www.tsalliance.org
Who I'd like to meet:



   Tuberous Sclerosis Alliance's Friend Space (Randomized)
Tuberous Sclerosis Alliance has 92 friends.
 Kate 


 *My Kenny's are my heart and Soul* 


 Kimberly 


 Janet 


 Ken D. 


 DANI GIRL 

Is Online
 Vanny 


 LeAnne 


 Cee 


 Keith 


 kat 


 SALSAGUERA 





Tuberous Sclerosis Alliance's Friends Comments
Displaying 18 of 18 comments  ( View All | Add Comment )
Laura





Jul 16 2008 8:03 PM

Hi Everyone, my name is Laura and my daughter is now 8 and was diagnosed with TS when she was a little older than 1 year old. I am looking to connect with other families helping their children adapt to life with TS. My child is struggling with now being aware of her differences.
Dawn Lee





Jul 16 2008 8:12 AM

my name is dawn...I am 33 and I have had TSC for 20 yrs I also have two kids with TS.
I am the adult liason for the alliance of the heartland and it s great to see a area where we can all talk and compare stories
Missy





Jul 15 2008 9:39 AM

Glad to see TSA on Myspace! My son Joshua has TSC. He was diagnosed at about 6 months old. He is four now. There are still so many people out there that have never heard of it. We had never heard of it until we got the diagnosis.
I pray they find a cure one day!
Mesofrog





Jul 6 2008 1:00 PM

Any one near the west columbus area? I have a 3 year old and 19 month girls. would love to get with a mom and dad that Have a child with the same thing.
One of my 3 has TSC





Jul 4 2008 1:22 PM


MySpace Comments - 4th of July, Independence Day
MySpace Layouts - 4th of July, Independence Day
Free Comments & Graphics
Jessica





Jul 2 2008 10:56 PM

I have looked at a lot of the people's profiles on here, most of which are parent's with kids. I am 22 and was diagnosed with TSC when I was 4, I was the fifth person in WA. state to be diagnosed and my mom had to go through several doctors to finally get the right diagnosis. I am only affected by TSC cosmetically (angiofibromas on only my face [minimal] and some orange peel tissue on my lower back). I just wanted to say I admire you parents who struggle daily and strive to be educated out of concern and necessity for the well being of your kids :-]
I admire you.
~Brieanne~





Jun 19 2008 9:32 AM

This is my Alex...she was diagnosed with TSC at 1 month of age. She is now 8.
Just Alex
~Brieanne~





Jun 16 2008 1:54 PM

I am so impressed that TSA has become involved with myspace to spread the word about TS. My 8 year old daughter has TS, and it has been a very rocky road. It's so easy to feel alone when nobody seems to understand what you're going through.
Thank you for helping us to connect to others who understand, so that we know we are not alone!!!
michael





Jun 16 2008 9:24 AM

my son has tuberous sclerosis as well and its nice to see someone spread the knowledge , so that way people can try to help :) you all take care and i wish everyone the best of luck may god be with you all:)
peace
michael:)
Eric Idol





Jun 12 2008 2:02 PM

Thanks for the add!

Photobucket
Lisa





Jun 12 2008 7:40 AM



Myspace Graphics

NICCI





Jun 7 2008 5:58 AM

I just gave you a sticker for your profile.

Click here to view it full size and send me one back!




[ See more stickers | Share this sticker! ]....

HAVE A GREAT WEEKEND ! NICCI

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.:*♥V@lNM!k3♥*:.





May 27 2008 5:47 PM

Thanks for adding me to your page! My dauhter was diagnosed with infantile spasms when she was 4 months old, she is now 4 yrs old & just had a left hemispherectomy to control her seizures. I hope that this site will help eventually find a cure or more research about IS.
Social Butterfly





May 27 2008 5:32 PM


MySpace Graphics & MySpace Layouts



Thank you for the opportunity
to connect with other TS Families and know that we are not alone.
NICCI





May 23 2008 4:44 AM

I just gave you a sticker for your profile.

Click here to view it full size and send me one back!




[ See more stickers | Share this sticker! ]....

JUST STOPING IN TO SAY I AM PROUD TO BE PART OF YOUR SITE. I HAD MY (VNS)PUT IN WEDENSDAY. IT WAS IN DETROIT HOSPITAL, I STILL HAVE TO GO BACK DOWN TO HAVE IT PROGRAMED AND THE MAGNETIC BRACLET PUT ON. OTHERWISE A LITTLE TENDER.. BUT, DOING BETTER.

NICCI

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click here.


One of my 3 has TSC





May 11 2008 3:26 PM

To all the mom's:


MySpace Comments - Mothers Day
MySpace Layouts - Mothers Day
Free Comments & Graphics
Charlie's Mommy





May 6 2008 10:54 AM

Thank You so much for joining Myspace! The more people that learn about this disease, the more help we can get for our precious children.
Mommy 2 Julia Isabel





May 5 2008 12:38 PM

thanks for the add
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