THE ULTRAVIOLET BENEFIT CD IS ON SALE NOW!!! Join us in our fight to find a cure for CF - 100% of the proceeds will benefit the Cystic Fibrosis Foundation. CLICK HERE TO BUY THE ULTRAVIOLET BENEFIT CD FOR CYSTIC FIBROSIS: You can learn more about CF at www.cff.org
UltraViolet Rock Show for CF's Details
Status:
Single
Here for:
Networking
Zodiac Sign:
Leo
UltraViolet Rock Show for CF is gearing up for the UltraViolet Rock Show and Art Auction for CF! Posted at 2:20 PM Apr 6 view more
About me: Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later.
here's a video recap of UV2009, courtesy of our friends, Cindy and Tiffany at finelinelive.com
UPDATE ABOUT THE 3RD ANNUAL ULTRAVIOLET ROCK SHOW AND ART AUCTION for CYSTIC FIBROSIS: THANKS TO EVERYONE WHO CAME OUT TO VOLUNTEER, DONATE THEIR ART OR MUSIC AND THOSE OF YOU WHOLE JUST CAME TO SUPPORT!!!
We raised $5,300 athe the event which brings the UltraViolet team total to $17,000 this year to the Cystic Fibosis Foundation.
Check the blog for recap and photo section for photos from the event!
The UltraViolet Rock Show is a benefit with the specific goal of raising funds to support research to find a cure for cystic fibrosis. Violet's Daddy plays bass in El Gato, and Mommy heads up Lovie. Violet was diagnosed with Cystic Fibrosis at 15 mos. old in November of 2006. Our first year, we raised just over $8,000 and last year we rounded out at $13,750. Thank you to everyone who supported and continues to join us in our fight to find a cure for CF. View our blogs to read some of the press we received last year... This page will promote all of the events we are involved in that will help raise money for the Cystic Fibrosis Foundation.
If you didn't make it to the show, but would like to order the UltraViolet Benefit CD, THE ULTRAVIOLET BENEFIT CD IS ON SALE NOW!!! Join us in our fight to find a cure for CF - 100% of the proceeds will benefit the Cystic Fibrosis Foundation. CLICK ON THE ALBUM COVER BELOW TO BUY THE ULTRAVIOLET BENEFIT CD FOR CYSTIC FIBROSIS:
JOIN OUR TEAM..OR..Walk with us! Visit our Team Page to find out how. Your generous donations will also be accepted! CLICK HERE:
Sarah K is sick of 10" of snow and is thus setting up her page like a rave which makes her want to DANCE!!! and no Ultra V and Rebec are the super cool ones!
As I do for you and your little bundle of joy, please pray that I pass my physical fitness exam next Monday. If I do, I will be the first person in Texas to be a certified peace officer with CF. This way, "WE" as a group will make history!!! Thank you and GOD BLESS!
I pray that she gets better soon. I will be at Children's Hospital in Dallas for a PFT reading before I go back to the police academy. I might see you guys there. Keep praying, keep breathing, and tell her to never give up. She is the next generation of hope! Your friend, Dave
We are launching a new fundraising for the 2009 called "The Power of 1 Person"... Our goal??? ONE MILLION DOLLARS from ONE MILLION PEOPLE!!! We have set up a deal with Paypal, so please click on the link below and donate your dollar... then send it to everyone in your address book and help us out!!! We will update you weekly at www. breathe4tomorrow. org on our progress!!! Or if you don't have a card (You don't have to be a member of Paypal to use Paypal!)you can gather your dollars from everyone you know (and urge them to do the same) and then send us a cashier's check!!! Thank you all so much...
Hello Violet family!!! I just wanted to stop by and say "Thank you" so much for support in 2008 and to wish you the best year yet in 2009!!! and keep that little CF Poster child cutie face happy and healthy!!!! xoxo Sarah Jean
YEAH!!!! I am so excited about them!!! You may reconize someof our CF family... I wish I could have put more, but then you couldn't see who it was!!! Take a look at these and let me know how many you want!!! They are $35 and that is no profit, that is just the shirt and shipping... I don't know how people ever profit off these... LOL... I saw them at $15 each and were SO EXCITED... until I read further, if I ordered 1000!!! eekkk... Tell me what you think... xoxo Sarah Front Back
Just stopping by to say hiya...and see how you all are doing. How is Miss Violet? Is she excited about Santa coming? I know our Dylan is so excited! He about jumps out of his car seat when he sees Christmas lights...lol. Well take care and I will write more later. Mandy
OK guys I have to sell 200 more bricks to sell... so please repost this and ask for family and friends to buy bricks as well...
We are in such a time for need right now... It is how this seems to work... When help is available, people don't need it because they are doing good too... And in times when there is need, there is no help... See how that works... It is a vicious circle...
Look for our next fundraiser coming up soon... In the next couple weeeks... It is going to be a cool fundraiser and hopefully will make headlines and get publicity for CF... YAY!!!
Thank you all for your support... We love you all and appreciate all your support... PLEASE PASS THIS ON!!
Yeah, we figured he could be the weekend punk rocker :) Didn't want it to be distracting to him or the other kiddos... You wouldn't believe all the attention we get with his hair like that... :)
