All we would like is for Dakota who is 5 years old is going home to be with the good lord above. please add him to your friends list and keep him in your prayers. In young boys with A.L.D. (Adrenoleykodystrophy), the disorder affects the body's ability to break down certain fat molecules known as the very long chain fatty acids. V.L.C.F. acids are substances that make up myelin.(Myelin is the fatty substances that form a sheath around the axons that carry signals to and from the nerves in the central nervous system as well as the brain and the spinal cord.) The myelin sheath is similar to the insulation on a wire. It enables the axons to carry signals very quickly. When the myelin sheath is damaged, the signals slow down or may stop completely. If the signals between nerves in the brain are slowed or stopped, a person can have problems with memory, learning, speaking, and understanding speech and other mental functions. In people with A.L.D., the body does not break down the V.L.C.F. acids, so they build up and damage the myelin, which causes problems with the functions of the nervous system and affects the adrenal glands (The adrenal glands makes hormones that help control many body functions. He also has A.C.C. (Agenesis if the corpus callisium) which is the bone around the brain that sends signals to the body which he does not have. A bone marrow transplant was suggested but it will not help him due to his condition being too far for a transplant. His bones are deteriorating so the transplant would make his bones deteriorate faster and he would not make it through a transplant.
Hey!! I'm moving to Hollywood the end of this month and I'm looking for a roommate. Let me know if you know someone wants to move to Hollywood share an apartment. (2beds/2baths) Thank you,
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