My Name is Reggie and I have neurofibromatosis. (NF) I will not hide behind a screen name anymore. My goal is to help bring understanding to my disorder not only for myself, but for others that may want support. It's not all about me. I want to interact with others just as someone without NF.
I am the youngest in my family. I have two sisters that have NF. They are not severely affectd as I am. I have two other brothers that do not have NF. My brother Ronald had NF. He passed last September. His NF turned to cancer.
It hurts as much now as the day it happened.
This is one of the reasons I will do all I can to help get neurofibromatosis a more talked about disorder. Get people talking, stir people into action. Remember to visit my site and blog. We can make a difference. Remember it's ok to JUST ASK! www.reggiebibbs.com
Please watch the video
/abclocal.go.com/ktrk/front
..
Good Morning To You, I just wanted to share a virtual cup of coffie with you ... I thought it would be a nice way to begin our day. I hope today finds you well.
Ruh-Roh, I got DEmoted! Kicked to SECOND place....I'm slow outta the gate! LOL. Miss hearing from you. Going through my Reg withdrawal. Need to know how my dear friend is doing!!! Tell the family I said hi. How's mom doing? Any details on camp, isn't it next month?
Comments
Sep 28 2009 3:47 PM
My Dear Friend
Wishing You A
Very Beautiful Day
An Week. May The
Lord Bless You In All
You Do...
Hugs
Jen
Sep 25 2009 6:26 PM
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Hey Neurofibromatosis - Reggie Bibbs, I am sending you a Strawberry Shortcake.
Send me a drink back!
Sep 25 2009 6:25 PM
Sep 25 2009 6:25 PM
Good Morning To You,
I just wanted to share
a virtual cup of coffie with you ...
I thought it would be a nice way
to begin our day.
I hope today finds you well.
Hugs
Jen
Sep 25 2009 6:25 PM
Grab a Graphic from pYzam.com
Sep 25 2009 6:25 PM
Sep 25 2009 6:25 PM
Hope you're having a great birthday my friend... What was you're plans for the day.. Take Care and Be safe my friend...
Sep 25 2009 6:25 PM
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I just kissed you.
Click here to kiss me back!
Sep 25 2009 6:25 PM
Sep 25 2009 6:25 PM
glitter-graphics.com
Sep 25 2009 6:25 PM
MyHotComments *<;-P
Sep 25 2009 6:25 PM
Sep 25 2009 6:23 PM
MyHotComments
Sep 25 2009 6:23 PM
MySpace Graphics & MySpace Layouts
MySpace Graphics & MySpace Layouts
Have a safe 4 of July with you're family & friends..
Sep 25 2009 6:22 PM
Any details on camp, isn't it next month?
xoxo
April
Sep 25 2009 6:22 PM
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I just kissed you.
Click here to kiss me back!
Sep 25 2009 6:22 PM
Sep 25 2009 6:22 PM
Sep 25 2009 6:21 PM
Sep 25 2009 6:21 PM
God Bless You Brother,
~KR
Sep 25 2009 6:20 PM
Sep 25 2009 6:19 PM
Thank You and
God Bless
Sep 25 2009 6:19 PM
Sep 25 2009 6:19 PM
May 7 2009 4:24 PM
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Kim sent you a private message!